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<div>I started this fundraiser after I went to the ER in late August 2025 so I'd be ready if my brain cancer progressed. I never wanted to share it with anyone, and I hate that it's come to this. But glioblastoma isn't called "the most malignant brain cancer" because it's a push-pop on a hot summer walk in the park.
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<div>Unfortunately, it's progressed; an MRI on Wednesday, July 8, 2026 revealed a new 17mm tumor on my Corpus Callosum. This means I'm out of the very promising clinical trial I was in, and the new best option is a multi-pronged attack to include: surgery (if possible), spinal tap, more radiation, wearing an Optune on my head 24/7, and custom peptide/dendritic vaccine therapy currently only available in Europe and very expensive, both for the treatment and traveling for administration.
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<div>I originally went to the ER in late August, 2025, because my right side wasn't working. An MRI found a 2.9cm tumor in my left temporal lobe. A brilliant emergency surgery on 9/2/25 resulted in a gross total resection, but the genetic tumor testing revealed it's Glioblastoma, a malignant brain cancer for which there is no cure. Yet.
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<div>I was fortunate to get into an expanded access protocol of a clinical trial drug called SurVaxM that has shown a good deal of success in early trials. Being in an EAP meant I was guaranteed to get the drug, not a placebo. Things were going great until my July 9th MRI revealed a tumor progression--a new 17 mm growth in my corpus callosum, the part of the brain that connects the two hemispheres.
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<div>I'll begin new treatment(s) this week. I'll also be sending tumor samples to an advanced customized treatment center in Germany, where they'll identify numerous biomarkers in my tumors genetic code that offer potential attack vectors. Over the next 4 to 6 months, they'll craft, refine, and manufacture a customized set of immunotherapies designed to train my immune system to attack my specific tumor.
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<div>One of the many reasons glioblastoma is so hard to treat is that it hides itself from the immune system and it's hard to get treatments past the blood-brain barrier. This German Clinic is doing great work and will begin clinical trials for FDA approval stateside very soon.
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<div>However, it won't be soon enough for me, and there's no guarantee that I would meet all of the eligibilities for the clinical trial anyway. I need to get the manufacturing underway ASAP so I can get the immunotherapies injected ASAP.
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<div>This analysis and manufacturing of customized treatments in Germany and subsequent administration in Lithuania is going to be very expensive, and it's going to mean I'm missing a lot of work.
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<div>It also means I'll be missing a lot of watching my boys grow up. They're five and eight now, and they'll be six and nine before I know it. I'm determined to watch them grow up, be a father and a font of unconditional love, work until I retire, experience empty-nest syndrome and grow old with Megan.
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<div>And so I humbly, gratefully, and desperately ask for your help. I've been in inpatient rehab and then day rehab since 3 days after my surgery. I've been working incredibly hard and made great progress. I've even gotten back out on the golf course and got certified for adaptive golf, and played in two adaptive golf tournaments this summer.
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<div>I'm receiving a "Bravery Award" from Chicago's biggest brain tumor charity, brain up, at their annual 5K walk run in September, which I believe is the glioblastoma equivalent of being knighted. I won't make you call me "Sir Cully", though (unless you really want to).
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<div>I've been walking without a cane since January and made a ton of progress that I want to build on, not watch crumble away.
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<div>I was planning to have my website a lot more beefed up before having to launch this go fund me, but you can follow my progress at <a href="https://www.tumorboisummer.com" target="_blank" rel="noreferrer noopener">www.tumorboisummer.com.</a>
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<div>I'll be updating it with both backstory and progress as time and energy allow. This neurological rehab thing is no joke--I can't tell you how exhausting it is to try to exercise fine motor control on your right side with
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<div>the right side of your brain when the left side of your brain has been doing it your whole life.
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<div>And here's the new little problem:
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Lora Eddleman

MIchelle Graham

TImothy Knewitz

Randy Cochran

Madelyn Cysewski

Shawn Gallagher

Tom Biagi

Holly K Lewis

Anonymous

Joseph Rydberg

David Cubberly

Diane Erl

Lisa Thornton

Claire Morson

Derrek Patton

Debra Dzialo

Staying Alive Until Glioblastoma Is Cured

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Staying Alive Until Glioblastoma Is Cured

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