It all started with a migraine (the first time i had ever had such a serious headache), at the start of September last year (2018). After it had lasted for several days, i went for an MRI at the local hospital in Dnipropetrovsk, Ukraine, where i reside.
The scan showed a mass on my brain - including a probable bleed, but it wasn't clear exactly what it was. The neurosurgeon wanted to operate on me straight away, but i believed i could cure myself.
Health and fitness is my passion and i had already learnt plenty in the past about how to treat cysts or tumors, so i started adding several products to my diet. Within about 3 weeks the headaches had gone and i felt great.
I'm a keen mountain biker and was out in the sunshine more often than not. I try to look after my physique in the gym too and kept this up...
That was until the start of December. My headaches returned and i wondered if it was because i had been pushing myself too hard in the gym. Maybe i had strained something or worse, torn some blood vessels and had a small bleed again. Better to stay out of the gym, i thought.
The Winter had begun too and cycling was something i could no longer do.
The headaches got worse and by New Year, i decided that i needed to return to the UK and seek an operation there on our trusty NHS.
I flew back after the first week of the year and went straight into A&E of my local hospital, Derriford, Plymouth.
I suffered a haemorrhagh within the first few hours and passed out. I must have tried to grab something to stop my fall, as i tore ligaments in my shoulder on the way to the floor...
I came around after about 5 hours. I was given some steroids and anti-seizure tablets.
I went home and it was a month later before i went into surgery. That was preceeded by another haemorrhagh and this time i was taken by ambulance to the hospital.
I had previously agreed with my neurosurgeon to stay awake during the operation. It was explained that by giving feedback during surgery, there was less risk of permanent damage.
The operation (resection) went well, by all counts, but it was only then that it could be analysed.
It was the following week that i was given the gravest diagnosis.
It is a stage 4 Gliosarcoma, a type of Glioblastoma Multi-Forme. The most aggressive cancer that there is. People don't generally survive this one.
The neurosurgeon gave me a 50% chance of another 12 months.
My world felt like it just ended there and then. I was stunned. Shocked. Dazed. Finished.
Well, that was then, but i'm a positive person. They wanted me to have Chemotherapy and Radiotherapy, but i know enough to understand that neither is effective against such cancer.
There are large parts of such a structure of cancer cells, that are 'hypoxic' - they do not need oxygen to exist. Radiotherapy does not affect them, but it will kill all healthy cells anywhere that it comes to contact with.
Chemotherapy largely wont pass the BBB (Blood Brain Barrier) too and will have a far worse effect killing healthy bacteria in my stomach and thus kill my immune system. I would become ill and weak. It is a poison afterall.
Once the treatment ends, the cancer would grow back even faster and the end would be nigh.
I have adopted a ketogenic diet since just after the operation (mid February). It works by starving the cancer of glucose. Our healthy cells can switch to live and thrive off of Ketones (which are an alternative energy supply from fat) as opposed to the usual glucose created from carbohydrates.
Cancer needs glucose. It can not live and grow without it. It becomes weaker in absence of glucose and more susceptible to a strong immune system.
It is a start. It is not so simple to starve the body of glucose as it comes from many other sources. Muscles are one such.
I'm still learning what more i can do to fight this fight, but it requires a lot of testing, a lot of trial and errors.
A lot of my current time involves testing my bloods regularly for glucose and ketones using separate meters and test strips, at various times of the day, (before and after eating various different food types mostly). It is also affected by such things like exercising, cycling, sleeping, fasting, stress levels etc.
I recently had an MRI scan at the local hospital back out in Ukraine. I returned as soon as i could. I await diagnosis of the results from my neurosurgeon here.
I need help to be able to buy various things, from herbs & supplements, as an alternative treatment known as 'phytotherapy', to extra test strips for blood testing, especially ketone strips, which are expensive.
I need to pay for further regular MRI scans using contrast dye injections for more detailed images and to closely monitor the state of the regrowth.
I will then need funds to utilise a further treatment, having regular sessions in a Hyperbaric Oxygen chamber at the local hospital. I expect it will be 3 to 4 times a week, depending on the speed of the cancer growth and might last for 2 to 3 months. I don't think this is available through our NHS, but i can access them here in Dnipropetrovsk. It is far more affordable here than the other countries in Europe.
At this stage, i do not know for sure, but as i understand it, that should give me a good chance of shrinking the cancer cells by non-toxic means, thus not affecting my healthy brain cells or wellfare. I'm not expecting to require surgery again, certainly the team from our NHS did not speak about this as a possibility.
I follow a 'guru' in this field of research, Dr Dom D'Agostino. He recommends the use of Ketogenic Esters during such sessions with Hyperbaric Oxygen. Firstly, to increase the apoptosis (programmed cell death) of the cancer cells, but also to protect against 'oxygen toxicity' too. I believe this is the best treatment that i can implement in my fight.
Other than that, Prof Thomas Seyfreid is another big name, in the world of expertise using ketosis to beat cancer. He explains that blocking glucose is not enough. Cancer cells can also get their fuel from Glutamine, so finding a way to block 'glutamate' is also priority. Green tea is the best natural product that i have discovered, thus far.
I'm currently feeling positive about this battle, but i'm also aware of how fast this thing can progress. I nickname him 'the pacman'. If i give him glucose to feed on, he will gobble it up with an insatiable appetite.
Please help me with my fight. I feel that i know which tools i need, i just need some help to obtain them.
It is my belief that i can learn enough, fast enough to act and defeat this cancer. The Hyperbaric Oxygen chambers are my biggest hope that combined with ketosis i can shrink and hopefully even reverse this situation.
I do not believe in the predictions or survival rates that were banded towards me after my operation. There are stories of survivors who have beaten similar Glioma's doing exactly what i am attempting. I don't consider this a death sentence, but i want to be totally prepared for whatever it throws in my direction. If i can keep a close eye on regular MRI results, i can make judgements as to what my next move will be.
Thankyou for reading and thanks in advance for your help.
Some links about the benefits of Hyperbaric Oxygen;The Truth About Cancer
“By increasing the oxygen environment to the cancer cells, it makes them less virulent and in many instances destroys them.” – Pavel I.Yutsis, MD, Oxygen to the Rescue
'Leading world experts in HBOT and the ketogenic diet: Angela M Poff, Csilla Ari, Thomas N Seyfried, and Dr. Dominic P D’Agostino concur that used alone, HBOT exhibits no effect on cancer growth or progression. However, this approachcombined with the ketogenic diet significantly delays tumor growth and increases survival time.'
“A Ketogenic Diet and HBOT produce significant anti-cancer effects when combined in a natural model of systemic metastatic cancer. Our evidence that these therapies should be investigated as potential non-toxic treatments or adjuvant therapies (complementary therapies).” – Dr. Thomas Seyfried'Dom D'Agostino
'In doing this work, Dom noticed that in the presence of hyperbaric (greater than normal) oxygen, cancer cell (in this case human U87 glioblastoma cells) death was accelerated In this case, hyperbaric = 5x atmospheric pressure
How did the cancer cells die? – cancer cell mitchondria started producing so much reactive oxygen species (ROS), causing them to essentially “explode”
'In the process of growing the cancer cells for the above work, Dom noticed they don’t proliferate/grow as rapidly as they should in the presence of beta-hydroxybutyrate (BoHB -a type of ketone)'
'In the presence of ketones and low glucose, cancer cells were more apt to die'
Youtube videos from Glioblastoma brain cancer survivors using Ketosis;Logan Sneed and Dr.Berg Alison Gannett : Ketogenic diet to beat brain cancer Trailer for the docufilm - 'The Magic Pill'