<div>Elated and super grateful to reach my initial goal, I have undergone the specialist spinal surgery, and I am now recovering. Any donations will assist with my 6 months to 1 year recovery. During this time I require physiotherapy, behavioural and psychological therapies, to secure my long-term mobility and relearn how to live with my disability, physically and mentally.
</div>
<div><br />
</div>
<div>My name is Jess, and I am fundraising for my condition Neuro-Cranio-Vertebral Syndrome- Filum Disease. This is a chronic condition which causes decent of the cerebellar tonsils, idiopathic scoliosis of the spine, low-lying cous medullaris, multiple disk disease (crushed vertebra) and fluid buildup in the spinal cord causing cysts (Syringomyelia). In layman’s terms, the filum terminal is fibrous tissue which extends the whole length of the spinal cord, mine is under too much tension resulting in all the above conditions. The operation required will cut the filum terminal releasing the tension.
</div>
<div><a href="https://youtu.be/i8GbcGkSY3otarget=_blankrel=noreferrer" target="_blank" rel="noreferrer noopener">Click for video</a>
</div><img alt="hqdefault.jpg" media_type="null" src="https://i.ytimg.com/vi/i8GbcGkSY3o/hqdefault.jpg" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>Although this disease is congenital (develops in the womb), I was only diagnosis 10 years ago (age 22), since then I have been fighting for treatment on the NHS. Due to the rarity of this disease consultant neurologists have been bouncing back my referrals and not offering me any treatment/ follow up scans or appointments. Concluding I am a rare case and not knowing how to treat me, resulting in my condition progressing. This and the physical demands of my job (a Marine Biologist/Expedition Guide which I now cannot return to), forced me to seek answers overseas, I have attended a clinic in Barcelona where specialist neurosurgeons concluded my case is now severe and rare because it's continuously progressing. Due to my physiological state continuously changing I am under time pressure to receive the treatment. They have recommended a spinal operation to halt the progression of the disease. This will not treat the lifelong and limiting symptoms, but it will halt them from progressing, saving my quality of life. There are over 100 symptoms caused by this disease. This specialist treatment is not available on the NHS it is exclusively performed at the <a href="https://institutchiaribcn.com/en/diseases-we-treat/filum-disease/target=_blankrel=noreferrer" target="_blank" rel="noreferrer noopener">Institut Chiari &amp; Siringomielia &amp; Escoliosis</a> of Barcelona.
</div>
<div><br />
</div>
<div><a href="https://youtu.be/7jxxCZV95iItarget=_blankrel=noreferrer" target="_blank" rel="noreferrer noopener">Click for more information on causes &amp; treatment</a>
</div>
<div><br />
</div>
<div><br />
</div><img alt="hqdefault.jpg" media_type="null" src="https://i.ytimg.com/vi/7jxxCZV95iI/hqdefault.jpg" width="100%" />
<div><br />
</div>
<div><br />
</div><img alt="81196379_172019431870329_r.png" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_172019431870329_r.png" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div><strong>A little about me:</strong>
</div>
<div><br />
</div>
<div><br />
</div>
<div>As breifly mentioned I work as a Marine Biologist in the renewable energy sector and as a Polar Expedition Guide.
</div><img alt="81196379_1720291455389467_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720291455389467_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div><img alt="81196379_1720291719386963_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720291719386963_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div><img alt="81196379_1720293805426949_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720293805426949_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>Although I feel extremely lucky to pursue this career, due to the stringent medicals needed to work offshore I am now unable to continue in this line of work. Which is heart-breaking when you have spent years specialising and working to achieve your dream job. However, I believe everything happens for a reason, maybe my path in life is changing and I have another calling.
</div>
<div><br />
</div>
<div><br />
</div>
<div>Running is another love of mine; I love the 'runners high' and get excited just by putting my trainers on!
</div>
<div>Unfortunately this is another passion of mine which the specialists have told me to significantly limit due to the impact on the spine and whole central nervous system from pounding the pavements. Running is a wonder drug and does amazing things for my mental health, so this is also a massive blow.
</div>
<div><br />
</div>
<div><br />
</div>
<div><br />
</div><img alt="81196379_1720292597150196_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720292597150196_r.jpeg" width="100%" />
<div>Finishing a 5K and puppy cuddles at the finish line is double endorphins :)
</div>
<div><br />
</div>
<div><br />
</div>
<div>This brings me onto my next passion which I am grateful to say will always be part of my life..... DOGS!
</div>
<div>Nothing in this world will love you like a dog, so wherever I am, you can find me knelt down petting a dog from Cornwall to Ushuaia (the most southernly city on earth). From pets, street dogs to working dogs they have all mastered unconditional love.
</div><img alt="81196379_1720293576929583_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720293576929583_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div><img alt="81196379_1720293607117811_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720293607117811_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div><img alt="81196379_1720293648419486_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720293648419486_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>Another hobby which I love and is amazing for endorphins is cold water submersion, whether polar plunging in Antarctica, ice bathing in my back garden or sea swimming in Cornwall.
</div><img alt="81196379_1720293953927415_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720293953927415_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>I also enjoy taking inappropriate photos when traveling this wonderful figure was in Rio De Janeiro.
</div><img alt="81196379_1720294069526760_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720294069526760_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>As you can see I am full of life, love to travel and explore, but my most favourite place in the world is Whitsand Bay, Cornwall (home).
</div><img alt="81196379_1720294236878961_r.jpeg" media_type="null" src="https://d2g8igdw686xgo.cloudfront.net/81196379_1720294236878961_r.jpeg" width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>Finally, I want to leave you with this, never look back always look forward. Time is not a given so use it wisely, we never know the true value of our freedom therefore take nothing for granted.
</div>
<div><br />
</div>
<div><br />
</div>
<div>I really appreciate you taking the time to read my story.
</div>
<div>I am eternally grateful for all the support. xx
</div>

Kristyna Krivankova

Wayne Cummings

Vivian Stone

Thomas Mesher

Offline Donations 

Offline Donation 

offline donation 

Offline Donation

Carol Massey

Rosemarie Sandra Hayward

Last Calendars 

John Lenney 

Nicky Stewart 

Claire Oakley

Miss C Baker

Help me fund Specialists Life Saving Spinal Surgery.

Support urgent earthquake relief and past recovery in Venezuela.

Apoya la ayuda urgente tras el terremoto y los esfuerzos de recuperación en Venezuela.

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

Support Comments Allowlist

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

isEligibleForProfileBadge

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Just £912£ to go! Make an impact.

Help me fund Specialists Life Saving Spinal Surgery.

Just £912 to go!
Make an impact.