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Baby Girl Getting Kneecap Realignment Surgery

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We are starting this fundraiser to help with expenses to prepare for Emberlyns upcoming surgery on August 17th, 2020 at 10:30am. She will be getting surgical kneecap realignment om her right knee due to luxating patellas, a common condition for her syndrome she has. MRI will be at 9:30am that day, and will go under anesthesia as they do so. September 14th is our next surgery date for her left knee, and the same will be done but starting at 11:30am that day. Emberlyn was born weighing six pounds five ounces and nineteen inches long on August first, 2019 at 8:04am. Shortly after a few months of thriving issues she was diagnosed with Nail-Patella Syndrome, which is a rare genetic disorder that is usually apparent at birth or during early childhood. Affecting the nails, skeletal system, kidneys, and eyes, our focus at the moment is the skeletal features, her hypoplastic patellae and patella dislocation. Us parents and medical team have been fighting with Emberlyn's insurance due to them trying to deny any coverage for this procedure- which is needed for chances of her walking, end her pain, and avoid even more traumatic problems in the future. The most we can get covered by them is the surgery itself but broken up into one leg at a time, but we have to pay the copay, and for 3-4 overnight observations that are required after surgery. The money raised in this fundraiser will go towards the equipmemt needed after the surgery and therapeutic items that will help make life easier for Emberlyn. The copay, and the costs of her being admitted for observations. Also to help with the costs of the trips we need to take for her Specialists she will be seeing during and after recovery, and the overnight stays for us parents while we wait to be released. We currently are struggling to make ends meet as we finally just recently beat homelessness now and only having one of us working has been difficult. We've been fighting the state to push through to get genetic testing finally done so she can qualify to see her specialists, but we keep getting denied so we are trying our hardest to do what's best for our daughter at this moment in her life. This surgery means the world to us because it can give Emberlyn a chance to walk one day, and be pain free just like any other parent would want for their child. A simple dollar would help us start saving up for this nerve wracking day, prayers would mean so much to us as well as we ourselves pray for a speedy recovery, and sharing the her story would really touch our hearts.

Organizer

Katlin Nelson
Organizer
Hudson, WI

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