Sophia's Chiari Surgery

Our 6 year old daughter, Sophia was diagnosed with Chiari Malformation and Syringomyelia in October. Chiari Malformation is a defect where the cerebellum, and in Sophia's case her brainstem as well, herniates into the upper part of the spinal canal.  Chiari in some cases can also cause obstruction in the spinal fluid causing cyst like fluid pockets called syringomyelia. If left untreated, syringomyelia can cause permanent damage to the spinal cord.  Back in August, Sophia went in for an x-ray of her stomach and the call from the Doctor was the start of our journey. We discovered Sophia has a 33 degree curvature of her spine, and after seeing a spine dr she was sent for an MRI. Scoliosis usually does not occur until adolescence so the extent of her curvature at her age was a huge red flag.  She had her MRI in October where her Chiari and syringomyelia were discovered.  Sophia is currently wearing a back brace for 22 hours a day to try and correct her curvature that is being caused by her syringomyelia.  Although there is no cure for Chiari, we are hoping with a brain operation  in February,  that it will  prevent further symptoms due to her Chiari, and prevent the need for further operations.  Currently Sophia is a very active little girl who is involved in gymnastics and soccer, but unfortunately after her surgery she will no longer be able to do gymnastics, trampoline parks, roller coasters and anything else that will be a danger to her brain.  It will be a lifestyle change but Sophia is a super tough, brave little girl; she is a Chiari warrior! Anything raised will go towards Sophia's medical expenses. We greatly appreciate any donation! With love and gratitude, Beverly and Oleff Jimenez

Donations

  • Mayela Hale 
    • $50 
    • 4 mos
  • Mercedes Segura 
    • $50 
    • 4 mos
  • Familia Garcia arias 
    • $100 
    • 4 mos
  • Cristina Lopez Jaramillo  
    • $100 
    • 4 mos
  • Carla bravo Martinez 
    • $50 
    • 5 mos
See all

Organizer

Beverly Jimenez 
Organizer
Mckinney, TX
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