Sonder's Miracle (Exome Trio) Fund

Sonder has been a surprising girl since before she was born. She was born via c-section after being breach and having limited movement in the womb. We are still in the process of determining why this was the case. But what we know so far is that she has Arthrogryposis Multiplex Congenita which has presented itself in a club foot, in the inability to swallow, and in many challenges in gross motor development, and arterial tortuosity. For the last six months our life has consisted of regular visits to multiple therapists, to several diffent specialists and surgeons, and to the ICU for several lengthy stays. She is currently undergoing genetic testing for syndroms with only about 100 reported cases in the world, which have the potential to shorten her life expectancy. However, the most surprising thing about Sonder is, despite all this, she has a great attitutude, is smart, loves faces, and is a very happy child. Our life as her parents is filled with stress but she frequently reminds us to enjoy life and to giggle. All donations will be put towards transportation to various other states to see specialists who have encountered such rare anomalies before, as well as any medical expenses not covered by insurance. It will also help with loss of income while both parents are present during extended hospital stays.