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Do you want to join us in making a difference? Cultural Diversity Network in Central Bank of Ireland are raising money in aid of Sickle Cell and Thalassaemia Ireland (SETI) and every donation will help. Thank you in advance for your contribution to this cause that means so much to us.
More information about SETI: Sickle Cell and Thalassaemia Ireland is a National charity organisation raising awareness of Sickle Cell disease and Thalassaemia with a focus on improving patient and parent health outcomes, improve education and understanding of the conditions, provide support, guidance and information to the community and the public.
Our Mission; Is to fight the growing prevalence of SCD and Thalassaemia in Ireland and create a proper support network between the patients, the community and the health professionals.
What is Sickle Cell and Thalassaemia?
Sickle cell: Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly haemoglobin (S stands for sickle). When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Parts of the body that don’t receive a normal blood flow eventually become damaged. This is what causes the complications of sickle cell disease although some individuals may be eligible for a curative bone marrow transplant. Sickle cell is an inherited (i.e., passed from parents to children through genes) blood disorder.
Thalassemia’s are inherited blood disorders characterized by decreased haemoglobin production. causing chronic anaemia. Thalassemia is an inherited (i.e., passed from parents to children through genes) blood disorder caused when the body doesn’t make enough of a protein called haemoglobin, an important part of red blood cells. When there isn’t enough haemoglobin, the body’s red blood cells don’t function properly and they last shorter periods of time, so there are fewer healthy red blood cells traveling in the bloodstream.It affects many people from the Mediterranean, Middle and Southeast Asia, the Far East and can be found in some parts of Africa, and many countries in Europe as a result of migration.
For more information please visit SETI https://sicklecellireland.ie/home
Organizer
Chino Okeke
Organizer
Sickle Cell and Thalassaemia Ireland
Beneficiary