Many of you have asked how Shane passed. It took nearly two months for us to get an answer. Shane died of a rare genetic mutation of his heart. The cause of his death is called Arrhythmogenic Cardiomyopathy. This disease is very hard to detect. Shane had symptoms throughout his life but unfortunately, normal heart tests did not show this problem. In Shane’s honor, we have created a foundation to contribute funds towards research which is being conducted at North Western University, their goal is to come up with simple standard screening for early detection. Please share this post to spread the word and awareness around this disease.
We thank you all for your support and love. We will never fully recover from the loss of Shane but we hope this foundation may aid us in carrying on his spirit. We hope that this foundation will help carry on his legacy of always showing kindness and love to those around him.
The Tanzosh Family
Contributions will go to:
The Shane Edward Tanzosh ARVC Heart Foundation, Inc.
As it seems the world works, the universe has connected us with a survivor. She has written a book on her journey. If you would like to learn more please consider picking up a copy:
No proceeds go to us our the foundation, just sharing another story.
- Douglas Alexander
- Jennie Rubenstein
- Deborah Smith
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more