Sean’s Medical Journey
Donation protected
Sean Miller’s Story
This is my twin brother Sean (I know, he’s the cute twin). From the age of 14 months, Sean has lived with a condition called Nephrotic Syndrome. Nephrotic Syndrome is a disorder that causes your body to excrete too much protein into the urine which causes damage to the kidneys.
As a young child Sean battled the illness, spending much of his childhood in and out of the hospital with some very scary moments. By the age of 8 Sean’s kidneys were failing and he needed a transplant, so our dad donated a kidney. After the transplant he had several complications and it was estimated that the kidney would only last a year. Miraculously, 27 years later Sean is still caring for that kidney and has maintained a healthy, normal life with only a few relapses.
Unfortunately, Sean’s winning streak is coming to an end as Sean has been diagnosed with kidney cancer. Two masses have been found on his kidney that are too large to remove without fatally damaging the organ. Because of the nature of his condition he is now needing to have the kidney removed and will not be able to have another transplant for an estimated 2-5 years. He is looking at a long and bumpy road ahead, full of surgeries and constant dialysis. As you can imagine this whole process will not just take its toll physically, but also financially. He will be out of work for some time and is looking at accruing out of network copays, weeks of travel and lodging to be near the hospital in Palo Alto California, along with dialysis, imaging, and a future transplant. At this time, being completely helpless to do much else I am starting this Go Fund Me campaign to attempt to alleviate some of Sean’s monetary burden so he can focus solely on his health.
If you are wondering how you can help now (since casting calls for a new kidney won’t start for a few years) any donation, good thought, or share of Sean’s story would help tremendously.
On behalf of myself and my family, we thank you in advance for your love and generosity.
CLICK HERE to follow Sean's journey on his Caring Bridge website.
Amy Miller Muro
This is my twin brother Sean (I know, he’s the cute twin). From the age of 14 months, Sean has lived with a condition called Nephrotic Syndrome. Nephrotic Syndrome is a disorder that causes your body to excrete too much protein into the urine which causes damage to the kidneys.
As a young child Sean battled the illness, spending much of his childhood in and out of the hospital with some very scary moments. By the age of 8 Sean’s kidneys were failing and he needed a transplant, so our dad donated a kidney. After the transplant he had several complications and it was estimated that the kidney would only last a year. Miraculously, 27 years later Sean is still caring for that kidney and has maintained a healthy, normal life with only a few relapses.
Unfortunately, Sean’s winning streak is coming to an end as Sean has been diagnosed with kidney cancer. Two masses have been found on his kidney that are too large to remove without fatally damaging the organ. Because of the nature of his condition he is now needing to have the kidney removed and will not be able to have another transplant for an estimated 2-5 years. He is looking at a long and bumpy road ahead, full of surgeries and constant dialysis. As you can imagine this whole process will not just take its toll physically, but also financially. He will be out of work for some time and is looking at accruing out of network copays, weeks of travel and lodging to be near the hospital in Palo Alto California, along with dialysis, imaging, and a future transplant. At this time, being completely helpless to do much else I am starting this Go Fund Me campaign to attempt to alleviate some of Sean’s monetary burden so he can focus solely on his health.
If you are wondering how you can help now (since casting calls for a new kidney won’t start for a few years) any donation, good thought, or share of Sean’s story would help tremendously.
On behalf of myself and my family, we thank you in advance for your love and generosity.
CLICK HERE to follow Sean's journey on his Caring Bridge website.
Amy Miller Muro
Organizer
Amy Muro
Organizer
Sparks, NV
