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Saving our Sanfilippo Kids

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Our beautiful daughter, Adriane, also know as "Sweet Pea" suffers from a terminal genetic condition known as MPS IIIA or Sanfilippo Syndrome.  Nationwide Childrens Hospital in Columbus has clinical trials that they would like to start but they need 2.5 million to do so.  These trials could save our kids!  Every dollar counts!  They are almost to 1 million from "Saving Eliza"  I want to raise the last 1.5 million so that our kids can have a better life. It's not just our daughter that you are saving, it is many kids.  Although it is a very rare disease it affects many families fincinacially and emotionally.
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Donations 

  • Tom & Joyce Wente
    • $50 
    • 9 yrs
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Organizer

Lori Schmackers
Organizer
Cassella, OH

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