Save Steveo

Hi I'm Steve-o! 27 years young, and diagnosed with Juvenile Rhumatoid Arthritis at the age of 2. It started in just my knees, and by the time I was 7 it had spread to every joint in my body, leaving me immobile and reliant on intense physical therapy, ice baths and I even had to live at Miami children's hospital for 2 years due to such high fevers (103+). Only knowing pain at such a young age, the simple things in life like tying my shoes, taking out the trash, and riding my bicycle were difficult to impossible. So I learned how to do things MY way, taking into account I'm still a growing kid. Arthritis destroys the cartilage in between your joints, which means it's bone on bone crushing pain every time I move, sneeze or walk. You know things are bad when sleeping is the most painful thing you have to do. In 2007 my knees got so bad I had to have full knee replacements, and that's when I finally felt instant relief, no more pain and unlimited mobility! I can't describe the feeling, but it's amazing. 2 down, 358 joints to go... hips are next because they're the most crucial to walking, standing and riding my bike. Hip replacements are no joke, it's very painful and kind of a long recovery road. But there is nothing I can't do! Just so you have an idea what a day in the life looks like behind the scenes;  I wake up and it takes me at least an hour to get out of bed due to the stiffness of my joints. After I crawl to the shower, the hot water helps alleviate some of the throbbing pain. After that I take 2 aleve to start my day.  Putting on my socks... now that's a mission.  I use my drum sticks as an extension because I can't reach my toes. Getting dressed seems easy but man does it hurt. And then it's time for me to hop on some drums. After a couple of hours of playing my right foot and ankle begins to feel like it's about to shatter, my shoulders get tight and start throbbing in pain.. This kind of pain will make any man cry.  Thank you for all your support in this journey!

Donations

  • Patricia Soto 
    • $100 
    • 59 mos
  • Kenneth Saunders 
    • $150 
    • 59 mos
  • jeffrey friedman 
    • $20 
    • 63 mos
  • Kenneth Saunders  
    • $150 
    • 63 mos
  • Princess Jinx 
    • $5 
    • 64 mos
See all

Organizer

Steve-o Drums 
Organizer
Fort Lauderdale, FL
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