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5 YEAR OLD NEEDS NEW YEAR’S MIRACLE

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Update :

On 23rd April 2023, our beautiful Rhea, the warrior princess, changed her armor for wings that led her to her star. She took her last breath in front of the loved ones and made her journey towards eternal peace.

Rhea was diagnosed on the 12th May 2022 at the age of just five. Rhea was only a tiny little girl but she was mighty, she fought Dipg on her own terms.

In the last 11 months, She has shown tremendous resilience as she never gave up until her last breath. She kept on saying ‘Mumma i want to get better’ until 2 days before her soul departed for a heavenly abode. Rhea did prayers, meditation, exercise and brought radical change in her diet which included smoothies and vegetable juices (no sugar no carb). She did everything under the sun to get better and with that fighting spirit, we as parents got the courage and strength and thereby we were able to take Rhea to USA, India and back to UK for her treatment. She endured 11 months of suffering and pain and not even once did she complained or questioned because she knew she will get better. She held on till her last breath but God had some other plans.

Rhea at such a tender age has taught us a lesson and we would like to spread this message on her behalf. Please be kind, spread love, and never give up hope. Keep fighting till your last breath and never complain in life. If it is meant to be, you will get it. For those fighting this deadly illness called ‘Cancer’ i would say, please do not lose hope. Pull up your socks, take a moment. Do your research, there are lot of support groups on fb that you will find. Read books such as ‘Radical Remission’, ‘How to Starve Cancer’, ‘Chris beat Cancer’ and many more. You never know you could be that miraculous person who could beat the odds and write your own book and come up with a protocol.

My daughter Rhea couldn’t get a place in the ‘miracle child’ list, because it was one of the most aggressive form of cancer and the blood brain barrier just did not let any medication reach the spot. But we do not have any regrets as we tried everything possible and this could not have been possible without Rhea’s support and determination. Rhea’s soul came to this earth with a mission to grow and thereby chose us as parents to help her sail through this journey. If this statement is even 1% true, then we are happy to have had this opportunity in this lifetime.

We would like to thank each one of you who showered their blessings and for the generous donation to fund for her treatment. Each and every blessings and your donations have helped Rhea get that extra time on this earth with us. We will be very grateful and ever indebted for this kind gesture. Please keep Rhea in your prayers

If possible, Please continue to donate to charities. Only 4% of funding is ringfenced for brain tumor(brain cancer) research for children. This means a death sentence is given to the child on day 1 of the diagnosis, which is not fair. No child deserves to die ruthlessly and not at all at this tender age.

Yours Sincerely !
Rhea’s Parents
Date: 26 Nov 2022

I write this plea with a heavy heart. It’s a struggle to type these words but I must. My beautiful daughter, Rhea, is dying of a rare brain cancer. My wife and I are fundraising to help treat and save her life. We really need your support.

Rhea is 5 years old, and will turn 6 in March 2023.

Our lives turned upside down in May 2022, when Rhea was unexpectedly diagnosed with a rare brain tumour know as DIPG. We were devastated. Things got worse when Doctors told us her tumour was incurable, and the prognosis for this type of tumour is 11 months.

DIPG is rare brain tumour and generally occurs in children the ages of 5-10 years. In Rhea’s case , it is in the Ponz (brain stem). There is no conventional cure as per NHS.

Since the diagnosis, Rhea’s has significantly deteriorated. She began losing mobility in right leg and right arm - unable to play with her friends, go to school, enjoy her love for gymnastics and swimming, and do all the things a young energetic 5 year old should. Nevertheless, Rhea is a fighter and has kept her beautiful smile. She has been so brave.

At first, Rhea had radiotherapy. Chemotherapy was not an option as there is a blood brain barrier where the tumour is located, and it cannot be operated or removed. Once Rhea’s radiotherapy concluded, she developed necrosis in her brain, which resulted in us having to administer drug infusions. For a young child, Rhea has been through many invasive and distressing treatments. As her parents, it is heart-breaking to watch our Rhea suffer this way.

The NHS tells us there is no cure and we should accept our Rhea’s fate. We are desperate to save our little girl. We have researched alternative therapies and clinical trials and found one such therapy which looks promising. A treatment centre based in the USA with a success rate, and cost of about £500,000 over a period of two years. We know if there is a chance for our Rhea to survive, we need to take it. We have spoken to a few parents of children going through this therapy in the USA and their kids have seen a massive improvement and their tumour is in remission. This has given us a lot of hope and we are now trying to enrol Rhea for this treatment.

From the time of her first diagnosis till date, Rhea has deteriorated rapidly. My once happy and energetic child is disabled. She cannot walk. She barely speaks. The tumour continues to put pressure on her nervous system. She has herself remained extremely positive and still speaks of her dream of being Prime Minister of the UK.

Once my Rhea is treated, I know she will shine as a loving and kind person. That’s who she is. Happy. Kind. Caring. We survive on hope - and are trying to do everything we can to help our daughter get better. We want to see our daughter grow up and live her dreams. That is all we wish for.

We are now trying to raise funds for Rhea’s treatment in the USA to help treat her and help her live a long life.

We urge for your support and will be grateful if you are able to donate whatever amount you can, however big or small; we know collectively, it will make a huge difference. We really appreciate any support you can give; prayers, donations, positive comments, and a share on social media.

You can find more information on DIPG at:


Thank you for reading.

Kind Regards,
Malay and Disha

Donations 

  • Anonymous
    • £200 
    • 10 mos
  • Anonymous
    • £10 
    • 11 mos
  • Desislava Genova
    • £10 
    • 1 yr
  • kinjal pandya
    • £505 
    • 1 yr
  • Nimisha Patel
    • £20 
    • 1 yr

Organizer

Disha V
Organizer
England

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