<div>Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suffering from <strong>Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Ehlers-Danlos Syndrome (EDS)</strong> and related comorbidities such as <strong>dysautonomia</strong> since aged 6. However, her health has taken a dramatic downturn in recent years with the onset of severe <strong>Premenstrual Dysphoric Disorder (PMDD)</strong>. In 2020, she had to be admitted to hospital to receive liquid nutrition via TPN because of extreme weight loss.
</div>
<div><br />
</div>
<div>Nevra's average day is about enduring extreme pain and trying to manage personal hygiene, medicine and food intake, while coordinating medical appointments. All of this is a lot to cope with on top of severe symptoms (migraines, nausea, fluctuating blood pressure etc. make eating and sleeping challenging). Often during intense PMDD cycles, she has difficulty speaking and cannot communicate with her carers.
</div>
<div><br />
</div>
<div>On top of this, she is dealing with a very unstable home situation due to physical neglect, mental and emotional abuse and religious coercion. Her family recently moved her against her will to a house where her bedroom is riddled with mould and facing relentless traffic noise and fumes, all of which have greatly exacerbated her ME symptoms. The ongoing threat of violence puts peace out of reach and makes recovery impossible.
</div>
<div><br />
</div>
<div>Before she became so profoundly ill, Nevra was also an avid reader, writer, dancer and yoga enthusiast. Despite having to leave school at the age of 11 because of severe ME/CFS, Nevra is intellectually gifted and managed to teach herself multiple languages (English, Turkish, Azeri, Farsi, Urdu, Hindi, Bosnian/Croatian/Serbian, Irish Gaelic and Greek).
</div>
<div><br />
</div>
<div>She used her language skills to translate the award-winning documentary <a href="https://www.unrest.film/" target="_blank" rel="noreferrer noopener">Unrest</a> into several languages to help spread awareness of ME/CFS. In 2017 she founded The #MEAction Network support group for Pakistan and she <a href="https://www.meaction.net/2018/04/05/chronic-illness-foundation-launches-in-pakistan-call-for-support/" target="_blank" rel="noreferrer noopener">advocated</a> for solidarity amongst the wider chronic illness community.
</div>
<div><br />
</div>
<div>Over the last two years, these skills have begun to fade because of her deteriorating cognitive function and reduced social contact. However, Nevra hopes she will be able to renew her passion for languages and communication as her health improves.
</div>
<div><br />
</div>
<div>Nevra has no savings or income, as she has been too sick to work her entire adult life. There is no social security or charitable support for disabled people in Pakistan, and a lot of stigma attached to chronic illness.
</div>
<div><br />
</div>
<div>This GoFundMe is to help Nevra cover ongoing basic needs as well as build for urgent surgical interventions, so she can access the care and treatments that she so desperately requires to live with a reasonable amount of dignity.
</div>
<div><br />
</div>
<div>Please contribute what you can to help Nevra to pay for:
</div>
<div>1) Cost of medications including saline IV to mitigate symptoms for one week $15
</div>
<div>2) Cost of MCAS-safe foods for one week $100
</div>
<div>3) Cost of her carer for one month $150
</div>
<div>4) Cost of temporary safe accommodation for one week $700
</div>
<div>5) Cost of laparoscopy surgery $4000
</div>
<div><br />
</div>
<div><strong>If you don’t have cash, please consider giving your time:</strong>
</div>
<div>Nevra is pleading for able-bodied or only mildly affected pwME as volunteers to assist with fundraising! Her current crew are all severe and we would appreciate back-up especially people prepared to help with social media updates or admin.
</div>
<div><br />
</div>
<div>Nevra needs to pay for the ongoing medical care she receives from her GP and local clinicians as well as transport to appointments. She has to pay a nurse to administer regular IV saline plus iron infusions, Vitamin D3 and B12. She depends on a paid carer for help with showering and food preparation.
</div>
<div><br />
</div>
<div>Nevra was hospitalized in order to be tube-fed in April 2020. Her MCAS sensitivities mean that finding calorically dense food that won’t trigger an allergic reaction is a constant struggle.
</div>
<div><br />
</div>
<div>Although the psychological issues she experiences are mostly due to PMDD which has a biological basis, Nevra has developed vital coping strategies with the help of a therapist whose support is also essential.
</div>
<div><br />
</div>
<div>Nevra inspires us. She advocates for herself in a world that constantly discriminates against disabled people, especially those with misunderstood illnesses. It takes courage and vulnerability to reach out for support. And despite her tortuous symptoms, she also supports her sick friends as much as she can.
</div>
<div><br />
</div>
<div>She continues to battle valiantly, where many others would have faltered. Please show her she isn’t doing this alone.
</div>
<div><br />
</div>
<div><a href="https://linktr.ee/SaveLizNevra" target="_blank" rel="noreferrer noopener">For more see <a href="https://linktr.ee/SaveLizNevra" target="_blank" class="" rel="nofollow noopener noreferrer">https://linktr.ee/SaveLizNevra</a></a>
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/68747427_1713897765118481_r.jpeg" width="100%" />
<div><br />
</div>
<div>Nevra at the Unrest Screening Q&amp;A Karachi, Pakistan by #MEAction Network
</div>

Timothy Murphy

Anonymous

Audrey ML

Tamara Epps

Thomas Shepherd

Mr N Benton

Elliott Pascoe

Holly Latham

Amanda Shortman

Aidan McKeown

Help Nevra Secure Surgery, Care, and Safety

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Help Nevra Secure Surgery, Care, and Safety

Still £49,866 to go. Help us build momentum.