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Save Hamza’s Life

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Hamza sma (spinal musculer atrofi) tip 1 hastası Hastalığın tanısı 2 aylıkken konuldu. 6 aylıkken bir yoğun bakım süreci oldu ve 2 kez kalbi durdu 2 aylık yoğun bakım sürecinden sonra toparlayabildi ama destekleyici solunum cihazına bağlandı (bibap) ve yutmasını kaybetti. Şuanda ağzından hiç birşey yiyemiyor sadece karnından takılan tüple sadece mama ile besleniyor. Amerika’da zolgensma isimli gen terapisi bizim tedavimiz fiyatı 2.4 milyon dolar olan ilaca ulaşmaya çalışıyoruz... Herkesten destek bekliyoruz bir bebeğin hayatına dokunmalarını istiyoruz. Hamza’ya nefes olun. Hamza sma (spinal musculer atrophy) type 1 patient The diagnosis of the disease was made at the age of 2 months. When he was 6 months old, he had an intensive care period and his heart stopped twice, and he recovered after 2 months of intensive care, but he was connected to a supportive breathing apparatus (bibap) and lost his swallowing. Currently, he cannot eat anything from his mouth, he only feeds on formula with a tube attached to his stomach. In America, we are trying to reach a drug called zolgensma, which is our treatment, with a price of 2.4 million dollars. We expect support from everyone. We want them to touch a baby's life. Breathe to Hamza.

Organizer

Hasan Bolic
Organizer
Tussendijken, NL

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