<div>My name is Emma and I’m Beau Johnston’s mum. We are in a race against time to see if we can save Beau’s vision.
</div>
<div>Beau was diagnosed with a Hypothalamic Optic Pathway Glioma (Brain tumour) BRAF KIAA fusion at 2. She had debulking brain surgery followed by 8 chemotherapy courses for progressive disease that left her visually impaired. Her recent scan has unfortunately shown a new tumour on her remaining functional nerve fibres.
</div>
<div>There is a targeted therapy called Tovorafenib or Ojemda that has shown great promise for tumours like Beaus. We had been hoping to access to save on the long lasting side effects of Radiotherapy with risk of stroke, secondary cancers, vision loss, pituitary dysfunction and cognitive issues. Unfortunately the phase 2 trial is closed and Beau is not eligible for the phase 3 and there is currently no route for compassionate access through IPSEN. To access via the USA it is 35k USD per month for the drug alone. And 450k for the year which is unattainable for most and certainly for us in the timeframe required.
</div>

Nicola Di Rollo

Anonymous

Richard Duthie

Abigail Wheatley

Mihika Dean

Ben Lees

Darren OHare

Jennifer McCallum

Kara L Cotton

Alastair Morgan

Marj Maclennan

Callum McLeod

Save Beau’s Vision -treatment fund to access tovorafenib

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

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comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

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fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

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charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

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openai

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Native 11.4.0 and higher

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GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

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challenge-fundraisers

Payment Identity Launch Verification - Production

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CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Save Beau’s Vision -treatment fund to access tovorafenib

Still £21,871 to go. Help us build momentum.