Santiago´s Cranio Surgery
Donation protected
On January 6th, 2019 our first baby boy came into this world. Santiago Alonzo was born healthy, but it was until his second month old when we (my wife Marisol and I) saw there was something unusual with his head.
CRANIOSYNOSTOSIS...
One of the scariest words we have heard since becoming parents. Our baby Santiago was diagnosed with CRANIOSYNOSTOSIS at 5 months old. His odd head shape had us concerned since he was 2 months old. We trusted our gut and asked for CT scan.
Craniosynostosis is the premature fusion of an infant’s skull sutures. The only treatment is surgery. If left untreated this can cause skull deformity and intracranial pressure that could affect his brain. Santi has 2 sutures that are already fused. He has the most common one and the rarest one. Unfortunately, this is not something that will fix itself, nor with the use of a helmet, Santi will need skull surgery. There is not a day we do not think about what he will have to go through and it breaks our heart. Our faith was almost shattered to pieces. The day we found out of this diagnosis, we felt FEAR for the first time. Worst-case scenarios kept going on and on in our head.
Our insurance is not wanting to cover the expenses, and the hospital is requesting an advance to perform the surgery on Santiago. We are not in a position to come up with the money right away, as we were counting on our insurance to cover his needed surgery. If he does not get his surgery done by the first week of December, the chances of getting brain damage, along with other health issues, are at stake.
Santiago has the sweetest & most fun personality. He is developing like a normal baby and his smile is contagious. God has been giving us words of encouragement during these past few months. We know God will help us through this. As surgery day approaches we ask for prayers for Santi.
We thank you in advance for any contribution. May the Lord bless you and your loved ones.
#TEAMSANTI
CRANIOSYNOSTOSIS...
One of the scariest words we have heard since becoming parents. Our baby Santiago was diagnosed with CRANIOSYNOSTOSIS at 5 months old. His odd head shape had us concerned since he was 2 months old. We trusted our gut and asked for CT scan.
Craniosynostosis is the premature fusion of an infant’s skull sutures. The only treatment is surgery. If left untreated this can cause skull deformity and intracranial pressure that could affect his brain. Santi has 2 sutures that are already fused. He has the most common one and the rarest one. Unfortunately, this is not something that will fix itself, nor with the use of a helmet, Santi will need skull surgery. There is not a day we do not think about what he will have to go through and it breaks our heart. Our faith was almost shattered to pieces. The day we found out of this diagnosis, we felt FEAR for the first time. Worst-case scenarios kept going on and on in our head.
Our insurance is not wanting to cover the expenses, and the hospital is requesting an advance to perform the surgery on Santiago. We are not in a position to come up with the money right away, as we were counting on our insurance to cover his needed surgery. If he does not get his surgery done by the first week of December, the chances of getting brain damage, along with other health issues, are at stake.
Santiago has the sweetest & most fun personality. He is developing like a normal baby and his smile is contagious. God has been giving us words of encouragement during these past few months. We know God will help us through this. As surgery day approaches we ask for prayers for Santi.
We thank you in advance for any contribution. May the Lord bless you and your loved ones.
#TEAMSANTI
Organizer
Javier A Chaparro
Organizer
Ferris, TX