<div>On Friday January 28th, days before Sage’s second birthday (2/1), Sage was diagnosed with an ultra rare rapid, progressive neurodegenerative disorder called Infantile Neuroaxonal Dystrophy (INAD). There are only 150 cases in the entire world currently. It is a combination of Alzheimer’s disease and ALS in a child.
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<div>There is no treatment or cure. She will become paralyzed, possibly blind and/or deaf, and unable to interact with her surroundings. Eventually the combination of the diseased brain and physical weakness becomes too great to sustain life and they will lose Sage between 5 and 10 years old.
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<div>Our entire family is devastated, but we can’t begin to imagine how Loreen and Steve feel. We have started this GoFundMe to try to lighten the load. Sage currently requires 24/7 care, and due to her severe weakness, medications, and tube feeds she cannot attend daycare anymore with her brother-- they are paying for a nanny just for Sage to be able to make all of her appointments and get proper medical care. Their insurance does not cover some of the expensive medical equipment Sage needs, including a standing frame. Loreen is away from work at the moment given the awful news. They are trying to plan family vacations now so that Sage can enjoy life to the maximum while she can still move and interact (and you have to be 2.5 to qualify for MakeAWish). We hope that this account can provide some support for them while they navigate their grief, this new life, and trying to give Sage the best life possible.<br /><br />****There is a possible gene therapy trial least 18 months  and a lot of  funding away. In honor of Sage you can donate here: <a href="https://inadcure.org/mission/superstars/sage-p"><a href="https://inadcure.org/mission/superstars/sage-p" target="_blank" class="" rel="nofollow noopener noreferrer">https://inadcure.org/mission/superstars/sage-p</a></a> <br /><br /><br />
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<img class="m-text-editor-image" src="https://d2g8igdw686xgo.cloudfront.net/63503207_1645660230671946_r." alt="" width="100%" media_type="3" />
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Anonymous

Hilary Paul

Meghan Garrant

Arlene Ilgenfritz

Jeff, Linds, Toddy, Todd and Jules Kirkland

Miles Colwell

Courtney Hacker

Michael Kirkland

Mike Dunn

Arthur Mann

Kenneth Gagnon

Michael J Tchou

Sage's Friends

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

isEligibleForProfileBadge

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Sage's Friends

Still $5,037 to go. Help us build momentum.