Support Ziorah

On March 26, 2019 I gave birth to the most precious babygirl ever who I named Ziorah Faith. Ziorah was already diagnosed with a right aortic arch on her heart before she was born. Unfortunately soon as I gave birth to Ziorah I noticed she had a lump on her forearm that was purple, but doctors told me it was just a cyst to not worry. My heart told me it was something else so I asked for more test. While she got a check-up for her right aortic arch they found a mass next to her during the x-ray so they rushed her over to CHOP where we spent 2 weeks there after all her results came back the “cyst” came out to be Lymphatic Malformation which travels all the way up to the left side of her upper arm and neck. The doctors aren’t sure if this mass next to her heart has to do with the lymphatic Malformation. Being as though she’s doing everything a normal baby does they sent her home on a Pulse OX Monitor to monitor her heart and make sure the mass doesn’t cause trouble. Doctors aren’t sure what exactly is this mass next to her heart. Ziorah started chemo for the lymphatic Malformation which helps to shrink it down in her body hoping it shrinks the mass that’s next to her heart so they can remove it. She will be on chemo for a year. Her insurance doesn’t cover medical supplies that she needs nor transportation to go back and forth to Chop she gets seen every two weeks to check on her heart she can’t get seen in any hospital or doctors office in Camden because they don’t know anything about her condition all the doctors who specializes in this are only in Philadelphia So we are reaching out to see if anybody is willing to donate and help our beautiful Ziorah. Anything is appreciated. There’s no cure for this condition & as a mother I want to always make sure my daughter gets the best care she needs threw out this journey.

Donations (0)

  • Julianna Jimenez 
    • $10 
    • 2 mos
  • Sylvia Castellar 
    • $20 
    • 2 mos
  • Angel Klawitter 
    • $5 
    • 2 mos
  • Mikayla Rodriguez  
    • $40 
    • 3 mos
  • Briana Cortes 
    • $5 
    • 3 mos

Organizer and beneficiary 

Chelie Ortiz 
Camden, NJ
Alice Santana 
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