Running a Marathon for Usher Kids Australia

My Nephew, Jett, who was born profoundly deaf just under two years ago, has recently been diagnosed with Usher Syndrome - an extremely rare genetic condition causing deafness, vision loss and poor balance that only effects approx 250 children in Australia and 400,000 world wide.

In support of Jett and a charity that supports him, my family and our friends (over 40 people across Sydney, Brisbane and Melbourne) are either running a Marathon (42.2km or joining along the way), walking 20km, rowing 20+km or cycling 75km on Saturday 13 Nov 2021 - two days after Jett's 2nd Birthday!

The money raised will support Usher Kids Australia, who work to ensure children diagnosed with Usher syndrome and their families have access to an informed, committed and caring community of clinicians, service providers, educators, researchers and peer support networks to allow them to thrive in their everyday endeavours. Website with more detail is https://usherkidsaustralia.com.

Your support and well wishes means Jett, his family and all those living with Usher Syndrome can be one step closer to finding a cure, and being looked after along the way.

Thank you very much!