<div>We are Emma and Harry and we have a beautiful daughter called Rosie, who is currently 8 months old.
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102461587_177809916199546_r.jpg" width="100%" />
<div>Becoming parents to Rosie has been the greatest blessing and surprise in our lives and when they say that the love that you feel for your baby is unlike anything else, they were right.
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<div>What was thought to originally be Canavans Disease, Rosie has been diagnosed with Combined Oxidative Phosphorylation Deficiency linked to the EARS2 gene, or else known as COXPD12, an extremely rare mitochondrial condition.
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<div>This condition affects how the body’s cells produce energy, especially in the brain. Without that energy, vital organs like the brain, heart and muscles can’t function the way they should.
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<div>Unfortunately, there is currently no treatment or cure available in the UK, and due to the rarity of the condition, Rosie’s fate is in the unknown.
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<div>So instead of focusing only on what we can’t control, we’re choosing to focus on what we can. We want to give Rosie the most beautiful life possible, no matter how long that may be. We want her to experience the world and to be surrounded by love every single day.
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<div>We want to make memories with her that we can hold onto forever, and to make sure that her life, however short, is full of warmth, comfort, and joy.
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102461587_1778099212410630_r.jpg" width="100%" />
<div>As Rosie has now been referred to palliative care, we have set up a GoFundMe page which will help us give Rosie the life she deserves, supporting her care, allowing us to create special experiences as a family. 
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<div>We also want to push forwards to fund research into her condition and hopefully work alongside some charities to help other babies and children like Rosie have the best chance at life.
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102461587_1778099259166240_r.jpg" width="100%" />
<div>Every single donation, no matter how small, would mean the world to us. If you’re not able to donate, sharing Rosie’s story would help reach more people who might be able to help.
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<div>With all our love,
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<div>Harry, Emma and Rosie x
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Sylvia Lakis

Anonymous

johanna londono

Sabrina Marra

Nicki Murray

Megan and Jeff St Denis

Anya Golding

N Perry-symes

Lauren Doy

Trish Evans

Mr Johnathon Smith

Bethany Moore

Russell Bridges

Imogen Ghoncheh

Ellie Lowe

Rosie’s life with COXPD12

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

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fund country is US and user language is English

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Streaming widgets beta user

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3DS payment method

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

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fallback mode accounts

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US Donation Upsell audience 

Auto Thanks Feature Audience

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International Only

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braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

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Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

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CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Rosie’s life with COXPD12

Still £1,108 to go. Help us build momentum.