Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18 000 people. It most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain's neurons -the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers. His condition has progressed and sadly it is a terminal disease. There is no cure to reverse the damage that has been caused and he is currently disabled, blind with no speech. It is unknown how long he will live a life with this disabiltiy.
Robert Santana and the family are kindly asking for your assistance in raising funds in prepareness to cover his hospice / funeral and related expenses.
He requires full time care and it has put a strain on the family financially. Frances had to become a personal care giver which has reduced the household income substantially.
Ricky and Frances are very thankful for all the love and support that has already been shown and will be forever grateful for any contributions.
All funds will be sent directly to Frances which will be forwarded to the funeral service.
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