JJ is a full of spirit kid wanting nothing more than to be able to get back to his baseline. Even though his muscles don't work the way they should he is still just as smart and full of joy as any other 2 year old. He also absolutely loves to play. Outside of his condition of myotubular myopathy he has been "healthy". So this hospital experience is very different from what him and the rest of us are used to. Seeing him this way absolutely kills us inside but we will do anything for him. It is because of this that we are doing this GoFundme. Since we do not have our typical nursing in the hospital both Jess and I have taken full control of his needs. This means work has taken a backseat along with finances. We are reaching out for some help. Anything is greatly appreciated (including prayers). We are trusting in God to get through this process and are declaring a miracle over JJ's life.