Rion Austin Page received his angel wings yesterday while he was sleeping peacefully. He has touched so many lives in his small amount of time here with all of us. Rion had a rare disease called Canavan’s which is a progressive, fatal neurological disorder that begins in infancy. He persevered through all his days with ups and downs but his smile shone through. Rion was such an amazing little boy and he will always be remembered.
Our small, little piece we can do now is to help the parents during this difficult time with donations towards his funeral costs. The Page’s are graciously accepting whatever monetary gift you may want to give to cover these costs. Any residual amount will be donated to the NTSAD for research, clinical trials for treatments as well as support for families affected by rare diseases.
May we continue Rion’s legacy with hope and faith that one day there will be a cure for such diseases and may we remember him always in our hearts. Rest In Peace Rion, fly high sweet boy.