Research for Pompe's Disease
Tax deductible
My name is Mark and I am a junior in high school.
During the summer of 2015, my friend Alex Ju and I plan to ride my bicycle from Princeton to Boston and back to raise awareness and money for research for Pompe’s disease. Pompe's disease is an rare inherited metabolic disorder which results in progressive muscular, skeletal, and nervous system weakening, and therefore the majority of patients are bound to wheelchairs and life support for the rest of their life. However, the median age of death for untreated patients is only 9 months. All proceeds will go to the United Pompe Foundation, which assists patients and/or their families with medical costs and other expenses that these patients and families face and may not be able to cover, or fully cover, through their insurance. Treatment for Pompe's Disease costs up to $300,000 a year and it is often not covered by insurance because it affects the patient for his/her whole life.
During the summer of 2015, my friend Alex Ju and I plan to ride my bicycle from Princeton to Boston and back to raise awareness and money for research for Pompe’s disease. Pompe's disease is an rare inherited metabolic disorder which results in progressive muscular, skeletal, and nervous system weakening, and therefore the majority of patients are bound to wheelchairs and life support for the rest of their life. However, the median age of death for untreated patients is only 9 months. All proceeds will go to the United Pompe Foundation, which assists patients and/or their families with medical costs and other expenses that these patients and families face and may not be able to cover, or fully cover, through their insurance. Treatment for Pompe's Disease costs up to $300,000 a year and it is often not covered by insurance because it affects the patient for his/her whole life.
Organizer
Mark Petrovic
Organizer
Princeton, NJ
United Pompe Foundation
Registered nonprofit
Donations are typically 100% tax deductible in the US.
