Raise up for Roman

Raise up for Roman has a twofold purpose: prayers and financial support for my sister's 1st baby Roman, suffering from one of the rarest, mysterious, genetic epilepsy syndromes- only 7 out of 124 cases worldwide with his exact gene mutation. Now at 3 months he is currently having almost 100 seizures daily, fighting for any amount of sleep, although he still loves his milk! His condition has the potential to cause severe disability and even death due to its migrating nature. Although every day is scary, Roman is a very special baby and has a purpose as the youngest patient diagnosed at CHOP, he may teach the world so much. However, there is no known cure and is a lifelong diagnosis. We are asking for prayers and financial support as he has spent 1 week admitted in Danville, a 10 day admission last month at CHOP, was life flighted X1,and is still currently admitted at CHOP for over 1week now trying to find a combo of meds to get our angel home. He will need close follow up and continued care. It's been very hard as a family to watch our baby develop as a beautiful strong boy who loved laughing and staring at momma to one struggling to sleep or keep his head up. We are keeping hope alive and hope you will raise up for Roman. "Acceptance doesn't mean resignation, it means it is what it is, and there's got to be a way through it".


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  • Anonymous 
    • $25 
    • 24 mos
  • Cassandra Sohnly 
    • $15 
    • 24 mos
  • susan mentrikoski 
    • $30 
    • 24 mos
  • Anonymous 
    • $25 
    • 24 mos
  • Joy Lulis 
    • $100 
    • 24 mos
See all

Fundraising team (3)

Kady Luchetti 
Raised $55 from 2 donations
Plains, PA
Michelle Hunt 
Maria Luchetti 
Team member
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