It’s taken me months to build up the courage to write this, about what happened to my beautiful daughter Rai-Leyah in November 2022.  I am wanting to raise money to raise awareness of brain AVMs and Brain aneurysms in children, along with the symptoms and the early signs to look for. I am wanting to use the money to name a suite in the Leeds LGI hospital in loving memory of my daughter Rai-Lèyah, for any families who have to stay in the Leeds LGI hospital when their child is on PICU as an emergency, as the rooms we stayed in as a family weren’t nice at all, the rooms were very basic and unwelcoming. I would love to create a more relaxing atmosphere for siblings and other family members. Also, I would like to use the money to invest in a school in a country less fortunate than the Uk, my daughter's dream was to become a teacher, so it would be an absolute dream to work towards opening a school in her memory.
  My 10 year old daughter Rai-Lèyah went to school on the 9th of November 2022 like every other day, happy and full of life making her TikTok’s with her friends before going to school. I received a call around 13:10 to say Rai-Leyah had suddenly collapsed at school and was non-responsive. I arrived at school within 3 minutes to see my beautiful daughter unconscious and non-responsive. The ambulance service took over an hour and 10 minutes to arrive at school, my daughter was taken to Pinderfields hospital where they weren't sure at all what was wrong. They took several hours to confirm that she has suffered a catastrophic bleed on the brain, after having an MRI, CT scan and angiogram. They told us as a family it was time critical. After 3 hours at Pinderfields she was rushed over to Leeds LGI  where they carried out an operation to release some of the fluid in her brain. At around 11 pm that evening we were told as a family that the operation wasn't successful and there wasn't anything more they could do for her. Over the next 5 days it was a matter of time before my beautiful daughter would pass away, the machine was doing all the work for her breathing, we were told she was fully brain-dead. Rai- Lèyah was the most loving, kind and caring unselfish person in this world. She loved before being loved, she always had a smile on her face, she wanted everyone else to be happy, she loved life, her family and all her friends, She loved school she would wake up at 6am every morning to make sure she was the first one by the school gates each morning, from year 6 to year reception everyone in the school knew Rai for been so kind and thoughtful and funny, she was the head of communication in her school which she was so proud of. She was a gymnastic fanatic, often showing her nana and uncle on most weekends her gymnastics shows with her cousin,Rai was a  competitive swimmer, and an Ice skater. She attended Islamic lessons and was learning to speak Arabic and Spanish. She loved playing the piano , horse riding with her little sister , football with her big brother, and she was full of life.   We are forever broken and lost without her. My  7-year-old daughter is missing her big sister, my son who is 12 has lost his life long best friend. They are both suffering and going through the most unimaginable heartache  and shock, grieving for their best friend Rai-Leyah. We were all so close, Rai-Leyah was the glue between us all being the middle child, our lives will never be the same. Her big sister is also absolutely devastated with the loss of her little sister Rai-Lèyah, We are all struggling as a family to deal with the shock of this devastating loss of our beautiful little girl, inside and out. I am as a mother doing all I can to try and keep going for the sake of my other  children, trying to be positive and make Rai-Leyah proud. I want her memory to live on by doing these things in her memory and trying to raise awareness of brain aneurysm’s and brain AVMs in children.   Rai-Lèyah was a fit and healthy 10-year-old girl who had never been ill in her life. 10 days before Rai-Lèyah collapsed she suffered from severe headaches that lasted 5 days. I had taken her to my GP twice and she was rushed to hospital via ambulance 2 times in those 5 days. We were dismissed each time and told that she was having migraines and they were common in children of her age. She was vomiting, was sensitive to light, and had slurred speech. The A&amp;E department told me that there was nothing seriously wrong with my daughter, and to stop wasting time taking her back to the hospital as it was only migraines. They refused to do a scan on my daughter. I need to make this clear to everyone that migraines are not common in children and please do not let the hospital send you away without a scan. If the hospital had scanned my daughter and taken me seriously they would have found the AVM and aneurysm, and they could have operated on her and potentially saved her life. This is why it is so important to me to raise awareness in families and schools.
 I ask that you kindly consider donating, every little will help so that I am able to raise awareness, get the hospital rooms furnished in a more comfortable atmosphere, to invest in a school in my daughter's memory in a less fortunate country.  Thank you 
  Rai-Leyah Mummy

Hannah Lomax

Sophie Precious

Shazia Ahmed

Louise Toth

Allan Thomas

Anonymous

ROSEMARY TINDELL

Abbie Bloomfield

G Knowles

Kirsty Norbury

Olivia Clough

Clakre Knowles

Carol Bartle

Elizabeth Caines

Corinna Nicol

Jerry Clay Academy

Rai-Leyah Saddique

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