<div><strong>Note: $(dólar) ≈ £(pound) ≈ € (euro) aproximately</strong>
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<div>Versión en Español ( más abajo)
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<div>Hello,
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<div>We are Paul and Nahomi, the proud parents of Rafaella, a little girl full of light and joy who recently received a devastating diagnosis: Spinal Muscular Atrophy (SMA).
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<div>SMA is a rare and cruel genetic disease. It weakens muscles and slowly robs mobility. Each day without treatment means a step back—a loss of strength, &amp; important abilities. But not everything is lost. There is real, tangible hope that could change everything for Rafaella.
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<div>That ray of hope is called Zolgensma, a revolutionary treatment that, with just one dose, can stop the disease and give her the chance to live a full life. It is our greatest hope but also our biggest challenge.
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<div>Time is against us. We have only 6 months to secure this medication before it’s too late. But we face a monumental obstacle that we cannot overcome alone—the unimaginable cost of 2 million dollars.
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<div>Today, we open our hearts to ask you to join our fight. Every donation, no matter how small, is one step closer to the dream of saving Rafaella. Every little bit helps, and your support gives us the strength to keep moving forward in this battle.
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<div>If you can’t contribute with a donation, you can still help us in an equally meaningful way—by sharing our campaign with your friends, family, and on your social networks. Together, we are stronger, and we believe that united, we can achieve the impossible.
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<div>Rafaella deserves a future filled with laughter, play, and dreams to fulfill. Please help us give her that chance. From the bottom of our hearts, thank you for giving us hope and for being part of this miracle.
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<div>With gratitude,
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<div>Paul and Nahomi
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<div>Follow us in IG
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<div><a href="https://www.instagram.com/rafaellaenmarcha.ec?igsh=MWpyYndoa21hNHZjdA==" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/rafaellaenmarcha.ec?igsh=MWpyYndoa21hNHZjdA==" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/rafaellaenmarcha.ec?igsh=MWpyYndoa21hNHZjdA==</a></a>
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<div>Note: For security reasons, funds raised through this channel are being transferred to a UK account of my aun ( Silvia Reyes)  and will be entirely used to purchase the drug Zolgensma for our daughter.
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<div>Hola,
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<div>Somos Paul y Nahomi, los orgullosos padres de Rafaella, una pequeña llena de luz y alegría que hace poco recibió un diagnóstico devastador: <strong>Atrofia Muscular Espinal (AME).</strong>
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<div>La AME es una enfermedad genética rara y cruel. Deteriora los músculos y roba poco a poco la movilidad. <strong>Cada día que pasa sin tratamiento significa un paso atrás</strong>, una pérdida de fuerza. Pero no todo está perdido. <strong>Existe una esperanza real y tangible que podría cambiarlo todo para Rafaella.</strong>
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<div>Ese rayo de esperanza se llama <strong>Zolgensma</strong>, un tratamiento revolucionario que, <strong>con una sola dosis</strong>,<strong> podría detener la enfermedad y darle la oportunidad de vivir una vida plena. </strong>Es nuestra mayor ilusión, pero también nuestro mayor desafío.
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<div>El tiempo corre en nuestra contra. <strong>Solo tenemos 6 meses para conseguir este medicamento antes de que sea demasiado tarde. </strong>Pero nos enfrentamos a un obstáculo gigantesco que no podemos superar sin ayuda: <strong>el precio inimaginable de 2 millones de dólares.</strong>
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<div>Hoy queremos abrirles nuestro corazón y pedirles que se unan a nuestra lucha. Cada donación, por más pequeña que sea, es un paso más hacia el sueño de salvar a Rafaella. Cada gesto cuenta, y su apoyo nos da la fuerza para seguir adelante en esta batalla.
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<div><strong>Si no puedes aportar con una donación, también puedes ayudarnos de una forma igual de valiosa. Comparte nuestra campaña con tus amigos, tu familia y en tus redes sociales. La unión hace la fuerza, y sabemos que juntos podemos lograr lo imposible.</strong>
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<div>Rafaella merece tener un futuro lleno de risas, juegos y sueños por cumplir. Ayúdanos a darle esa oportunidad. Te agradecemos de todo corazón por darnos esperanza y por ser parte de este milagro.
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<div>Con gratitud,
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<div>Paul y Nahomi
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<div><strong>Síguenos en IG</strong>
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<div><a href="https://www.instagram.com/rafaellaenmarcha.ec?igsh=MWpyYndoa21hNHZjdA==" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/rafaellaenmarcha.ec?igsh=MWpyYndoa21hNHZjdA==" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/rafaellaenmarcha.ec?igsh=MWpyYndoa21hNHZjdA==</a></a>
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<div>Nota: Por seguridad, los fondos recaudados por este medio están siendo derivados a una cuenta el UK de mi tía  ( Silvia Reyes) y serán íntegramente destinados a la compra del medicamento Zolgensma para nuestra hija.
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Lilia Gonzalez

Gabriela Gutierrez Ibarra

Anonymous

Maria Wright

Freducho Val

Jillian James

Cecivon Contag Vicente

Daniela Garrido

Maria Jose Mendoza A.

Rafaella nos necesita - Tenemos 6 meses para salvar su vida

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Rafaella nos necesita - Tenemos 6 meses para salvar su vida

Still £754,429 to go. Help us build momentum.