In July 2011, when Rye was born it was discovered he suffered a Stroke in utero. It was a rough start to life and devastating for his family. Six months later Rye was diagnosed with Cerebral Palsy.
Rye, in typical Rye fashion, dealt with life's curveball, he was developing well, albeit with his own challenges. It looked like Rye’s cognitive level was almost on par with kids his own age. He understood everything and had his own way of communicating his needs. Until the regression started.
Over the last few years Rye has been regressing and losing skills. He has an Intellectual Disability and cognitive impartment, he is now at a level of a newborn.
The Royal Children’s Hospital have been conducting many tests but Rye’s regression currently goes undiagnosed. He is now labelled with ‘Syndrome without a Name’ (SWAN) because the specialists know he has a syndrome but it cannot yet be recognised. Rye’s future is unknown.
Rye always has a smile for everybody, a trait he inherited from his parents, Rhys and Brooke, who along with Rye's little brother, Jed, strive every day to give Rye his best life.
We are helping this family of champions to raise money for a "wet room" for Rye which will be a purpose built bathroom to help Rye with his day to day hygiene necessities.
Any donation, small or large, will be so greatly appreciated. And don't forget, for every $10 donated you will receive an entry into the draw to win a hot lap with Rick Kelly in his #15 Castrol Supercar at Sandown Raceway.
To check out Rye's story, click here
For information on the hot lap, click here
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