Finn's Medical Expenses

Finn Marchesoni was born at 33 weeks with Congenital Hyperinsulinism, which is a very rare condition that occurs in 1/25,000 to 50,000 births.  In it the pancreas randomly creates too much insulin, which causes Finn to have sudden and sever low blood sugars.  For example, the other day Finn's sugar dropped over 70 points in about 35 minutes and he felt miserable.  Low blood sugars can cause irritation, disorientation, seizures, brain damage, and death. 
Finn must see the Pediatric Endocrinologist in Philadelphia (CHOP) at least once a year to help monitor his condition.  His next hospitalization occurs in the middle of July 2017.  During this hospital visit the Drs and Nurses do their best to help Finn be as healthy as possible.
Finn also has several cardiac issues, but one (pulmonary hypertension) is due to his medicine which helps regulate his blood sugar.  While we are at CHOP this year, they are trying to also plan a catheterization to monitor how this problem is looking and what we can do.  There are very few medicines for Hyperinsulinism, due to it being so rare, and none of the others help him.   If they are not able to combine the trips, Finn will need to be hospitalized twice as soon as we can, once to monitor and help his Hyperinsulinism and another time for a catheterization. 

It is hard to ask for help, but we need help.  Finn is no longer on Medicaid and we are already several thousand dollars in debt, all for medical expenses.  We want to be able to be there 100% for Finn and not constantly worrying about how to pay for it.  He deserves all of our attention and love during this hard time for him.  He has spent so much time in the hospital, he knows what to expect and that makes it harder.  Please consider helping our little guy, and if you are unable to do so perhaps share his story.

Donations ()

  • Connie Green 
    • $20 
    • 29 mos
  • Anonymous 
    • $150 
    • 31 mos
  • Andrew Scott 
    • $150 
    • 32 mos
  • Mark Stoffan 
    • $50 
    • 32 mos
  • Steven Trout 
    • $20 
    • 32 mos
See all

Organizer

Rivers Marchesoni 
Organizer
Sylva, NC
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