Finley is now 9 months old and since he was born he has had a high white blood cell count which with frequent blood tests never went down, he has been in an out of hospital with countless infections, viral and bacterial which come up in the form of blisters and abscesses which wouldn’t heal properly with any form of treatments he was being given in our local hospital.
After months of looking for answers, constant antibiotics and him in pain and spending half his time in hospitals and being told he would grow out of it, we kept on fighting for answers to what was really wrong with him. We were referred to Crumlin children’s hospital in June where we were told Finley has a rare immunity disease called Luekocyde Adhesion Deficiency type 1, which causes you to be prone to infections but also your white blood cells are unable to do their job causing the infections not to heal and get worse. Finley’s body has been attacking itself on a daily basis from the minute he was born.. Only 1 in every 1million baby’s are born with this and if not found and treated, they will not live past infancy.
Finley will need to go Newcastle in the UK to receive life saving treatment which includes, Chemotherapy, a bone marrow transplant and stem cell treatment. They will need to remove what little immune system he has and rebuilt it, and he will need to live in the hospital and need someone with him 24/7.
His 3 year old sister has now recently come back as a match to be his bone marrow donor. We all have to move from our home in Ireland over to Newcastle for Finley’s treatment.
We have set up a Gofundme page in the hope to gain some financial freedom while we focus on getting Finley better and on the road to being healthy, to also help us cover the costs of moving our family to the UK and the day to day expenses we will face during our time in Newcastle.
It has been a very very sad time for us all, and we appreciate any donation, no matter how small. We will also give regular updates.