Help Karla beat Multiple Sclerosis
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We are the parents of a beautiful 16 year old girl. Last week Friday, Karla was diagnosed with multiple sclerosis (MS) and we are still dealing with the shock of this.
We were on holiday and Karla started experiencing migraines. A few days later the left side of her body went floppy and she had difficulty walking and using her left arm. She was admitted to hospital where she has had an MRI scan (revealing lesions on her brain) and various other tests done before they diagnosed her with MS. Also, the doctor told us that Karla's Evoked Potential test results for eyes (which measures the electrical activity of the brain in response to stimulation) were the amongst the worst she has seen in her career.
We have looked at treatments for MS. Karla has been in hospital for a week now and is receiving cortical steroid pulse therapy. However, this will not cure her of MS. It will only reduce the period between 'attacks'. The 'attacks' are unpredictable in severity and duration.
We want to provide Karla with the best care possible and as such, will explore all options that we are able to in order to help her get better such as getting a second opinion, trying different healing approaches and so on.
Our last resort will be medication. The latest medication for MS approved by the FDA is Ocrevus and costs 8474 euros per bottle. For the first 2 weeks of treatment alone, Karla would need 2 bottles - and for the first year of treatment, 4 bottles in total.
In addition, we will move home so that Karla is closer to her school. She was having difficulty with her mobility and we do not know what to expect in the future. So we want to make things as easy as possible for Karla. MS is very unpredictable and there is a possibility that she will wake up one morning and not be able to get out of bed.
Karla is a talented flutist and is a Gifted and Talented student. In 2 years, she is hoping to go to Oxford University. She also wants to start learning to play the cello. All this will only be possible if she heals herself from MS.
Karla will also need to completely change her diet and learn techniques for managing and reducing stress. All of this will lead to costs that we are unable to cover by ourselves. Please help us give Karla the best chance possible to overcome this and to heal herself.
Thank you from the bottom of our hearts.
Tajana, Faizel, Karla and her little sister Maya
We were on holiday and Karla started experiencing migraines. A few days later the left side of her body went floppy and she had difficulty walking and using her left arm. She was admitted to hospital where she has had an MRI scan (revealing lesions on her brain) and various other tests done before they diagnosed her with MS. Also, the doctor told us that Karla's Evoked Potential test results for eyes (which measures the electrical activity of the brain in response to stimulation) were the amongst the worst she has seen in her career.
We have looked at treatments for MS. Karla has been in hospital for a week now and is receiving cortical steroid pulse therapy. However, this will not cure her of MS. It will only reduce the period between 'attacks'. The 'attacks' are unpredictable in severity and duration.
We want to provide Karla with the best care possible and as such, will explore all options that we are able to in order to help her get better such as getting a second opinion, trying different healing approaches and so on.
Our last resort will be medication. The latest medication for MS approved by the FDA is Ocrevus and costs 8474 euros per bottle. For the first 2 weeks of treatment alone, Karla would need 2 bottles - and for the first year of treatment, 4 bottles in total.
In addition, we will move home so that Karla is closer to her school. She was having difficulty with her mobility and we do not know what to expect in the future. So we want to make things as easy as possible for Karla. MS is very unpredictable and there is a possibility that she will wake up one morning and not be able to get out of bed.
Karla is a talented flutist and is a Gifted and Talented student. In 2 years, she is hoping to go to Oxford University. She also wants to start learning to play the cello. All this will only be possible if she heals herself from MS.
Karla will also need to completely change her diet and learn techniques for managing and reducing stress. All of this will lead to costs that we are unable to cover by ourselves. Please help us give Karla the best chance possible to overcome this and to heal herself.
Thank you from the bottom of our hearts.
Tajana, Faizel, Karla and her little sister Maya
Organizer
Faizel Manjoo
Organizer
