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Princess Diyanna

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Hi Everyone!

Thank you for clicking our link. This is to help our Princess. When Diyanna was 7 months old she was diagnosed as having a form of childhood epilepsy. This is a degenerative neurological condition that has no cure. According to her specialists children like Diyanna rarely survive childhood. It has been very hard for us in so many ways but we want to make the best of whatever time we have with her.

Diyanna’s condition means that she can have up to 500 clinical seizures on a bad day. Along with the epilepsy Diyanna also has Dystonia, Hypotonia and Global Developmental delay.

She cannot hold her head, roll over or sit. Her ability is limited to a 2month old baby. Because of this Diyanna requires 24*7 care and also a lot of different equipment and modifications not only to help her but also to help us take care of her.

Due to the high demands of care Diyanna needs, the numerous hospital stays and various medical appointments I have had to change to working part time. My parents have been with us the past 2 years leaving there home in Sri Lanka so that  they can support us with her care. 

We we have always tried our best to manage the situation ourselves. But as Diyanna grows and her condition fluctuates the financial strains on providing for her also has increased.

Diyanna is our pride and joy. She is a fighter and she keeps pushing the limits put on her little life. We are thankful for everyday she is with us and for all the joy she brings into our life.

Thank you for your small contribution to help in giving her the best quality of life she can have.

Organizer

Cindy Perera Ranasinghe
Organizer
Murarrie QLD

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