We are the Prebianca family - Connor, Sarah, Camilla and Georgia. Our youngest daughter suffers from a rare and devastating disease called Lesch-Nyhan Disease (LND). It is a very rare and severe genetic disorder that usually manifests in extremely low muscle tone, high uric acid in the blood, neurological implications, and involuntary brutal self injury behaviour. LND is a result of genetic code defect of the HPRT gene and represents itself usually in males at a rate 1 of 350,000 males and even less in females, about 12-20 documented cases in the world.



 


We are trying to do everything in our power to ensure Georgie’s highest mobility and quality of life.



 


Georgie has two private physiotherapists, a private speech therapist, an Osteo and, hopefully, a private occupational therapist.



 


She has a naturopathic dr who monitors her levels and makes supplement recommendations.



 


We try to engage her the best we can with new toys and equipment to encourage her gross and fine motor skills.



 


With Georgie’s low tone, array of prescriptions and G tube, we need a nurse or PSW to watch her while the parents go for respite. 


 

We are going to renovate our garage into a main floor bedroom and bathroom so Georgia can eventually wheel herself around independently and we can reduce the strain on our bodies. 


 


Everything given will go directly to help Georgie’s everyday life and safety.

Anonymous

Linda Murphy

Annah Nolet

Rachel Runge

Barb Kirkey

David Place

Gloria Vinton

Maria Cipolla

Don Moore

Penny Waddell

Irene Shaw

Aleksandra Jankovic

Cynthia Yan

Beverley Bennett

Coleen Bush

Georgia’s Fund

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

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English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

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fund country is US and user language is English

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

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Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

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Android v12.11.0 and above

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Payment method type group to be vaulted on success

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Share Text generation Skip Fundraiser

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International Only

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Payment Identity Transfers ATO Risk Check (Targeted) - Production

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Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

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Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

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Activity Tracking v1 Beta Testing

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Platform is iOS v11.2.0 and above

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unclaimed charities

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AI Chatbot Audience

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UC Flow Enabled (Prod)

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Custom users

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Android v11.0.0 and above

Users Receiving Payments Paused Notifications

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Team EGG - IP Address list

NPO recommendations prod

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UC Tipping v20250107

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GB Donation Upsell audience 

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Thank you V3 testing whitelist

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Is Recurring Friendly

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NPO upsell disaster relief category

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CH Donation Upsell audience

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NPO upsell medical category

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Localized Currency

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Survicate

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Non-charity fund

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NPO Profile Opted-Out

iOS App Version

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PYMK has donors

iOS v12.3.0 and above

Georgia’s Fund

Still $68,975 to go. Help us build momentum.