Melissa Koempel is organizing this fundraiser on behalf of lisa garrow.
Please help Suzie Garrow, and her mother Lisa Garrow, to raise money for Jace's medical bills and funeral expenses!
We are trying to help baby Jace's parents, Suzie Garrow and Matt Niland, raise funds to help pay for his medical care and funeral expenses.
Unfortunately, baby Jace passed away this week. Please see the update on this page for a message from his mom. His story is still posted below, to honor his memory. Jace brought so much love to so many people in his short time, and fought so hard to be here. Please continue to pray for his family as they grieve. He is truly and deeply missed.
Here is Jace's story, as told by his mom, Suzie:
When I was 20 weeks pregnant we were told that our baby wouldn’t make it. We transferred my care to Johns Hopkins Hospital to see a fetal therapy specialist where we found out our son had a rare birth defect called LUTO (lower urinary tract obstruction). His particular case he has posterior urethral valve, (affects about 1 in 8,000 babies) which means there is a blockage in his urinary tract that kept his urine from getting out while he was in utero. Since his urine could not get out completely it backed up into his kidneys, causing his kidneys to become damaged. Without urine being able to get out of his bladder it also caused me to have no amniotic fluid which posed a threat to his lungs as well, since kidneys and lungs work hand in hand together. I had an amniocentesis done to see if his LUTO was genetic (which we found out from the results it is not genetic and happened only by chance) and a vesicocentesis (They took a sample of his urine while he was in utero) procedure! to try to see if we could find out how damaged his kidneys were by checking his protein levels and etc. We were not sure exactly to what extent how damaged his kidneys or lungs were until he was born.
Jace had been a breech baby from the beginning and originally my due date was December 5th, but they had scheduled me to have an amnio infusion(where they put amniotic fluid in me), a version (where they try to flip him the right way), and either a vaginal birth or c-section depending on the results of the version on November 29th. I went into early labor thanksgiving night, so we headed to JHH and they moved my scheduled day for all the procedures to Monday (November 27th). But Jace didn’t want to wait, and was born on Sunday through an emergency c-section at 3:44pm (he weighed 7 pounds and 15.7 ounces). Jace was born on November 26th 2017. Before we even got to see him or hold him, he was immediately rushed to the NICU. Jace had to fight for his life since the moment he was born!
We found out his lungs were a lot worse than anticipated. He has pulmonary hypoplasia, pulmonary hypertension, and pneumothorax in his lungs and needed the maximum support from the ventilator in the NICU. Jace has been very sedated and on paralytic since the day he was born to keep him stable. On December 2nd (Jace’s 6th day of life), he was rushed to the PICU (pediatric intensive care unit) at 6am because he needed more support than the Nicu had to offer. Once Jace got to the PICU he was put on ECMO (Extracorporeal membrane oxygenation) which is a machine that works as an artificial lung to try and give Jace’s lungs a chance to rest and heal. He is currently on a lot of medication to help him during ECMO and still on a ventilator, and hooked to many different machines to support his life. He was also put on dialysis as well, to help his kidneys. Jace had a left sided stroke due to a blood clot in his head, which has not grown any more or changed since, that they have to keep an eye on. We haven’t gotten to his LUTO yet because his lungs are the most important to heal right now.
Jace is still very very sick, however he has made baby steps of progress which is great to hear. We were originally told Jace would be on ecmo for about a week, but it has now been 2 weeks going into 3 because he had a lot of fluid on him and they have to get the fluid down before they can check to see how his lungs are looking to get him off of ecmo. They plan to take him off of ecmo within this week and they said it could go three ways, but we are staying positive and hoping for the best.
This has been a roller coaster with many downs, but prayers and well wishes have been working because they have been able to get some fluid off of him which was our goal for the last weeks. The doctors here at Johns Hopkins are wonderful and we feel we are in one of the best places we could be. We are thankful that we live in a time where they have all these ways to help our sweet baby. However, medical bills become costly, and though we will do WHATEVER we have to in order for Jace to come home with us and be healthy no matter any amount of money in the world, we would appreciate any help we could get. Anything helps and is very much appreciated.
We love our little boy so much and hate seeing him sick. He has been fighting so hard even while in Utero. He’s showed the doctors what a fighter he is. He is so strong and we just want our beautiful little peanut to get better so we can take him home and spoil him with all of our love. Thank you for reading our baby's story, he has a long ways to go but we will wait for him to take however long he needs to heal, and we will be by his side everyday until he is completely healthy and we can take him home.
❤️ We hope and pray that everything will go the best it can, and that the doctors can do all that they need to in order for Jace to be alright. Please keep praying for baby Jace to heal and become healthy as he keeps fighting everyday. #prayersforbabyjace #keepfightingbaby
You are so loved Jace and we are the luckiest parents in the world to have you as our son ❤️