Please Help Riley Fight Cancer

PLEASE HELP RILEY FIGHT AN EXTREMELY RARE AND AGGRESSIVE CANCER

Adrenocartial Carcinoma 

Hi my name is Kelly (Rileys Mother). Riley had a fall on a piece of play equipment at the local park in the second week of the school holidays back in July 2020. He bumped the piece of equipment on his right side but felt instant excruciating pain and started vomiting immediately. I looked for bruising but the impact was extremely mild. Mike (my husband) and I just thought it was his anxiety due to his autism.

I walked us all home but Riley was in so much pain, he had difficulty walking (lucky we didn't live far from the park).

Riley was so unwell that he went and laid down as soon as we got home. He vomited a couple of times afterwards within a period of 3 hours. He was so still that I was so worried because normally he was climbing and bouncing all over the place.

After 4 hours I tried to get Riley up and that was when he collapsed onto the floor and crawled out the back door screaming in pain and then again vomited. I took him straight into emergency where the vomiting continued.

Once seen by doctors, Riley was given anti nausea meds which put a stop to the nausea thank goodness. They also gave him a CT scan on the area affected where they discovered a lesion on his right hand adrenal gland. They were not sure what it was so transferred both Riley and I by ambulance to the Perths Children's Hospital later that afternoon.

We arrived around 8.00pm and was admitted being told that Riley was to have an ultrasound the following morning.

Around 10.00am that following morning, Riley had his ultrasound. They told me that they wernt to sure weather it was a mass or a hematoma so discharged us with a followup appointment in 6 weeks time.

Unfortunately after 6 weeks the mass had doubled in size to the size of a mans fist. It had distroyed his right hand adrenal gland and was pushing on all his surrounding orgains and his aorta. The  following day Riley had 16 biopsies taken from the mass.

The Perths Childrens Hospital moved quickly with the Onocologist team on board. Riley had to have emergency surgery to remove the mass resultng in the loss of his right hand adrenal gland. The surgery took 12 hours as the mass was very much attached to surrounding tissue.

Riley was put into an indused coma for three days. 12 days later we recieved the news that Riley had an extremely rare and aggressive cancer which has a very low survival rate. 1 in 2 million get this type of cancer but not in Children. Unfortunately we recieved the news that the cancer has spread to his lungs. He will now have to fight for his life and endure up to a year of intensive chemo.

Riley only turned 9 on the 10th of September 2020 where he spend his birthday in hospital having a PET scan and fasting. 

We have two other children that are 7 and 4 and are living in Perth WA with very little help and support as we moved here in May due to loss of buisness because of Covid. We live in Armadale 6112 and we are constantly commuting back and forwards into the city for appointments and treatment. We are trying to move closer to the city. My husband is the only one working at the moment.

We are looking for donations to help out with costs of fuel and loss of wages (anything would be much appreciated), thank you Xx