Life is pretty amazing. One moment you are a kid and the next you are a grandmother (Nana). I am Kaleb's Nana. I would like to share his amazing story with you and then keep you updated. I hope you will be blessed, encouraged and join with me in prayer for this lil man and others like him. On August 1, 2010 Kaleb was born. He was deemed healthy. By that evening we noticed he was breathing really hard and a 'pulse ox' test was given. He measured an 8 out of 100 for oxygen levels in his blood, his heart was failing, he was dying. The next morning he was flown to a Portland Oregon hospital where the doctors were able to stable him by putting in a balloon to open up his valve The news for his future was bleak. He had Aortic Stenosis and Endocardial Fibroelastosis (EFE). Doctors felt he would need a valve replacement called the Ross proceedure and might even need a heart transplant. The plan was to get him as old and as big as we could because once a child has a valve replacement done they will need several more before they are adults because the new valves don't grow with the children.
In his first year he ended up having two balloon surgeries, the last of which caused regurgitation. He was also on a multitude of medications including an experimental drug. But Kaleb thrived even when doctors would not give us hope.
In his second year he had surgery to close his patent ductus arteriosus (a hole in his heart)
We are now in his third year and just got the news that they found his coronary artery, pulmonary valve and the left side of his heart was enlarged. They don't understand how this could have happened in such short time. The leaking in his heart and his aortic valve function is severe. He will be going in for a double valve replacement ( Ross/ Kono) as well as repairing the areas they can. Because his heart is so damaged they have a plan A and B. We are making arrangements for his surgery as soon as possible.
Kaleb has had many miracles in his short life he needs another one...
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