Piper's Fund
Donation protected
Piper has a rare chromosome abnormality called Inverted Duplicated Deletion of the 8p Chromosome. This little change presents some big challenges for our sweet girl and she deals daily with profound physical and developmental delays. Weekly, Piper typically sees 5 different therapists for speech, occupational therapy and physical therapy. In 2015, when Piper was 3 years old {Drew and Hannah} started researching intensive therapy options and some specialized therapy options that we thought would be a good fit for our girl. In 2016, after our first Perfectly Imperf8ct Barn Party Fundraiser, we traveled to California for Piper’s first three week session at the NAPA center and, hard as it was, we found that it was a great fit for her and she saw great gains and her confidence soared.
We try to take Piper to 2-3 intensives per year now, as it fits into our family schedule, and as finances allow. Each intensive costs about $4000-5000 out of pocket and we typically pour all of Drew's time off into these times as well.
2020 Was supposed to be our year for our third Barn Party (our goal has been to have one every two years), but with the current challenges with "Rona" we have had to put that on hold. It is sad for our family because it is such a fun community connection event, and also it is the single largest source of funding for Piper's therapy fund. SO, we are looking at trying to make up at least one year of fundraising, in hopes that we can fund Piper's therapies until we are able to plan another event.
We are so very thankful for all your support and are looking forward to seeing Piper continue to grow and develop. To God be the glory!
We try to take Piper to 2-3 intensives per year now, as it fits into our family schedule, and as finances allow. Each intensive costs about $4000-5000 out of pocket and we typically pour all of Drew's time off into these times as well.
2020 Was supposed to be our year for our third Barn Party (our goal has been to have one every two years), but with the current challenges with "Rona" we have had to put that on hold. It is sad for our family because it is such a fun community connection event, and also it is the single largest source of funding for Piper's therapy fund. SO, we are looking at trying to make up at least one year of fundraising, in hopes that we can fund Piper's therapies until we are able to plan another event.
We are so very thankful for all your support and are looking forward to seeing Piper continue to grow and develop. To God be the glory!
Organizer
Hannah Hettinga
Organizer
Wausau, WI
