Meet Peyton- an incredible 11 year old girl with an infectious laugh and a devilish smile that can jump right into the heart of any unsuspecting person. Peyton has a great enthusiasm for life; she loves riding her bike, going to school and when she isn’t around the horses at the farm, she enjoys being with her family – including the family dogs of course.
Peyton looks like her peers on the outside, but on the inside she is dealing with a very serious and life threatening disease!
When Peyton was only four months old she was diagnosed with Cystic Fibrosis
(CF)! At the time of diagnosis, Peyton’s family was advised that one particular genotype affecting her lungs was very rare and would become exceedingly aggressive over Peyton's lifetime. She spent 3 months at the hospital for Sick Children after her initial diagnosis. Due to complications to Peyton's CF, she has required multiple inpatient admissions to Children's Hospital in London, ON. On other admissions the family has had to go to Toronto for care. During these stays, there is a huge financial burden on the family! They have to pay for things on their own: parking, accommodations, food, and miscellaneous items. Along with this, they still pay all the regular household bills!
Peyton deals with a lot of health issues associated with Cystic Fibrosis on a daily basis. She requires medication and physio multiple times a day to help with her breathing and to clear mucus from her lungs. Every time Peyton eats during the day she takes: Cotayzmes, a medication which aids in digesting her fat, protein and sugar as her pancreas doesn't produce enzymes. Peyton also takes multiple vitamins, iron and extra supplements of vitamin A and D daily. Three times a week she has to take Azithromycin to help prevent further infections. Every evening Peyton has to have a shot of insulin, due to Cystic Fibrosis related Diabetes. While Peyton is sleeping she is hooked up every night to a feeding pump that gives her enough calories to maintain her weight!
Due to Peyton's age and location of the transplant unit, Peyton and her family will soon need to relocate temporarily to a location close to Sick Kids Hospital in Toronto. The first time will be for a 3 week assessment. During this time the transplant team would assess her health, to see if Peyton is eligible to be put on the transplant waiting list for a double lung transplant! If it is deemed borderline during the assessment, and she isn’t put on the list immediately, she will need to undergo re-assessment approx. every 3 months. When the family gets the call that Peyton has a donor match and the transplant takes place, they will be in Toronto for a long time! There will be travel/living costs in Toronto and at home during this time, as well as during the recovery period after transplant (3-6 months). Many things are not and will not be covered by OHIP or her Dad’s benefits!
Your support in helping Peyton and her family get through this part of Peyton's life journey is greatly appreciated. With your help, they won’t need to worry about financial burdens and can focus on Peyton's health and the journey ahead! Please help out this amazing girl who wants to help others when she gets older by becoming a nurse or a child life specialist!