Paul has had vocal and motor tics since he was about 5 years old. However, he was taught to suppress them through humiliation, exclusion and strife. About 6 years ago - some 20 years later - Paul's tics returned with a vengence. The turning point, our Wedding Day, where the nerves of waiting for me at the alter created a tic in his legs. From there the movements and noises evolved almost daily.
About 3 years ago, we finally made a breakthrough, and Paul was diagnosed with Tourette's Syndrome with Dystonic tremor and cramps.
Paul has been working hard to treat his condition with all sorts of medications and behavioural therapy, none of which have worked. Some have even resulted in potentially irreversable and permanent side affects (Tardive Dyskanisia and Akathisia). Paul's Doctors have now described his condition to be labelled as non-medicine responsive and our last option is Deep Brain Stimulation - Brain Surgery.
We are looking for the help and support from our family, friends and community as this surgery has become available to Paul in as little as only a month away! This is both terrifying and exciting. Yet, more terrifying as we have very little time to arrange our finances that depend on Paul's income, as I have been home raising our son, Caden (nearly 5 years old). We need help to cover travel costs, our bills, food and above all Paul's recovery (which can take up to 12 months potentially), as we have been left with little to no savings and very little paid leave as we have been on this journey for so long.
Caden is super excited that daddy is finally getting the surgery, that he will soon stop ticcing and he will be able to play endlessly with him.
I am looking forward to being able to lay in Paul's arms without his arms moving around.
Paul is looking forward to not looking at everyone in envy, wanting so badly to stop moving or making silly sounds.
I humbly thank everyone who contributes to this cause. You are helping our family remain whole in this troubling time.