2 years ago I was diagnosed with CUP (cancer of unknown primary.) I was initially treated with chemo (EP) for Germ cell cancer, which was ineffective.
We sent the biopsy privately for a second opinion where they diagnosed the type of cancer as Papillary RCC Type 1 (an uncommon type of Kidney cancer.) Chemo is ineffective for this type of cancer.
Therefore I was treated with second line therapy called Sutent for several months with no response.
Afterwards they tried an Immunotherapy called Nivolumab, which was also ineffective and could only tolerated for 2 cycles and had to be stopped due to severe side effects.
In recent months the situation has deteriorated to the point where I had plural fluid around the lungs and heart which had to be drained several times, with the fluid returning each time. Amongst other complaints to the point where I have to use a wherlchair.
As none of the conventional therapy’s have had positive feedback and no real response, we would like to seek alternative treatments around the word. As a starting point we would like to raise the money for a treatment in Germany at a clinic called Infusio.
We are willing to try anything and everything so my sweet children can have there father around for as long as possible.
If any proof is needed in regards to my illness or treatments, it will be provided upon request.