Our Odyssey

“Before connecting with Our Odyssey, I felt different and isolated from society when trying to figure out the next steps in my future.”
“I had no one to talk to about my challenges and felt judged by my peers.”

As young adults impacted by a rare or chronic condition, we are faced with hardships and challenges. How do we cope with the condition? What about talking with family, friends, and romantic partners about our health condition? What are our future family planning and career options?

After speaking with young adults from over 45 different rare and chronic conditions - representing thousands of other young adults - we decided to create Our Odyssey to bridge this gap and provide year-round support to young adults between the ages of 18 to 35. Our mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. We believe this to be an opportunity for young adults to share their journey with their peers since there is nothing lonelier than feeling alone and uncertain about your future.

“Finally, through Our Odyssey I am meeting people like myself who understood what I was going through.”

“I felt like a new person who could accept the condition as a part of my new normal lifestyle.”

We provide in-person meet ups that connect young adults to one another and remind them that they are not alone in their journey. Our plan is to expand our platform to reach thousands more young adults. Through this, we hope to empower young adults to build their own local communities and enrich their lives.

If interested in learning more or if you have any questions please reach out to Seth Rotberg at seth@ourodyssey.org or Kristina Figueroa (Wolfe) at kristina@ourodyssey.org 

Thank you for joining us to help us get one step closer of addressing the unmet needs of young adults in the rare and chronic communities!


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  • Matt Gordon 
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    • 4 mos
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Seth Rotberg 
Natick, MA
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