
Our baby boy needs your help
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Hello everyone, this is being written by the parents of D’angelo Fritz (Alexandra Gerez and Dino Fritz). Our baby boy is a twin and unfortunately, he has been having health issues since he’s been 6 months. The nightmare started on 10/09/21 when he received his 6 month vaccines along with the flu vaccine. 45 minutes from receiving the flu vaccine he got his first seizure and he had to be rushed to the hospital because his oxygen levels were desatting. He has been hospitalized numerous times and back in November he was admitted to the hospital for 2 weeks and this is when they diagnosed him with epilepsy. He had to get 2 lumbar punctures, an MRI of the brain, CT scan of the brain, multiple EEG’s, 3 genetics test and we still do not know what is causing the seizures. They put him on 3 seizure medications and they had the seizures under control for about 4 months. Until we hit early March, when he started getting sick and the seizures became uncontrollable. He has had the Rhinovirus twice, the human metapneumovirus and now he has the RSV (respiratory syncytial virus). And every time he gets sick, the seizures occur more often, and he would aspirate. He would take the 3 seizures medications by mouth and the PPEC (medical daycare) noticed the aspiration with the medication given. Due to the aspiration, we had to make a tough decision whether or not to have them insert a feeding tube in his stomach and as parents we feel as we did the right thing by allowing them to proceed with the surgery which thankfully everything turned out great. Now, he has the RSV which I mentioned before and this virus causes an infection of the lungs. We took him to the hospital because he was breathing faster than usual and kept spiking a fever. As of right now, he is having difficulty breathing and is requiring oxygen which means he cannot breathe on his own. One of the doctors mentioned that this can cause respiratory failure. We cannot understand why all of this has happened to our 15 month old innocent baby boy. We have hope and faith he will outgrow all of this but it has been rough for us. There are times where me and dad have been weeks without working because one of us would have to stay with the twin and the other with D’angelo at the hospital. No matter the circumstances, the hospital bills continue to pile up and there’s only so much we can do. Our plan is to take him to another country to get different procedures done and to see if we can get him seizure free or to at least decrease the amount of seizures he gets. We personally do not like to seek for help but we’re at a point where we are desperate for answers. Anything that can be given will be very much appreciated.
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Alexandra Gerez and Dino Fritz
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Hollywood, FL