Having a genetic desease is rough and not understood. This could kill the boy's, just like cancer. People understand cancer. They know it is rough. But when you put IPEX down, I find people do not understand we are in a fight for these boy's lives. Ipex attacks your body. For RJ it has attacked his lungs, liver, kidneys, immune system, and the latest attack is his patuitary gland. Rj has spent years in the hospital. Littlefoot was transplanted early so he would not get the organ damage Rj has. There are only about 180 known cases of IPEX worlwide.
Immune dysregulation, polyendocrinopathy, enteropathy, X-linked (IPEX) syndrome is characterized by the development of multiple autoimmune disorders in affected individuals. Autoimmune disorders occur when the immune system malfunctions and attacks the body's own tissues and organs. Although IPEX syndrome can affect many different areas of the body, autoimmune disorders involving the intestines, skin, and hormone-producing (endocrine) glands occur most often. Most patients with IPEX syndrome are males, and the disease can be life-threatening in early childhood.
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