Well here I am, 7 years and 7 months old, BEATING the odds. And after countless genetic tests and years of waiting for the insurances to pay for a specific one (targeted exome sequencing) I have a diagnosis! Congenital Contracture Syndrome #7. The seven is there because I am only the 7th person in the entire would to be diagnosed with this. In short, both of my number 17 chromosomes are broken, there is nothing to fix this, it's just who I am!!! I am only 7 but I am a growing girl. My mom and dad do their very best for me but as I continue to grow it is getting to be almost impossible to take me out and about. I love to go places, see new things, I love to swim and visit animals at the zoo! But without your help these things may not be possible for me in the future!
So I ask you, for whatever is possible for you to give, help my mom and dad to be able to purchase a handicap wheelchair accessible Van!
Hi, my name is Jennifer, Cheyane's mom and Jason her dad. Cheyane is our whole world and we do everything with her, if she was able to speak I believe this is a short version of what she might want me to tell you! She is a one of a kind girl. This Van would help us in many ways that most people would often take for granted! Doctors appointments, day trips, fun trips and trips back to PA to see her Grammy and Pap! We THANK YOU for listening to our RARE BIRD'S story! God Bless
Sincerely Jason Jennifer Cheyane
- Jennifer Phillips
- Maureen Dindak
- Giuliana Mastrangioli
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