It is with a very heavy heart, I write this about my niece, Olivia.
Olivia, a sweet, kind, silly eight-year-old girl, who loves soccer and unicorns, went to the ER for ongoing pain in her shoulder. We thought it was a simple snowboarding injury but it was that visit, that changed our lives.
After several MRI’s, the Doctors found a “bump” as we call it, in her spinal cord. This led to Olivia undergoing surgery, which lasted 14 hours, where the Neurosurgeon tried to remove as much of “the bump” as he could and biopsy it.
We knew recovery would be a long road ahead, but we were not prepared for what came from that biopsy. On March 1st 2019, Liv was diagnosed with a very aggressive grade IV Diffuse Midline Glioma. This is extremely fast growing, very rare and is inoperable; at this time, there is no known cure. The family is exploring all options including clinical trials. As a result of the surgery, Olivia lost sensation in her right arm and leg so she’s needing physical therapy to try to regain her strength and movement. To help keep Liv comfortable and to slow down “the bumps” rapid growth, she will start undergoing radiation treatments.
Those who know Olivia, her younger brother Jack, and her parents Brian & Emma, know how special this family is- they are selfless, giving, kind, hard-working and this sudden diagnosis has been devastating for the entire family.
In addition to a miracle, we need the support, prayers, and funds to help The Lipnicky Family through these rough days ahead with their daughter, our precious girl, Olivia. We are requesting funds as soon as possible to help with all aspects of her treatments. Any small donation would go a long way to save her and help the family.
We also need to build awareness and funds for research for this rare disease – there has been little progress in improving treatments and cure rates over the years.
The proudest Aunt there ever was xoxo #FightLikeaUnicorn