Olivers Heart Tumour Surgery
Donation protected
**UPDATE** At this time we are still waiting to hear from NHS England as to what they will be funding. As we need to book Olivers surgery date sometime this month, we still need to hit our target at this current time, so we are continuing to fundraise until we hear anything from NHS England. Thank you all for your continued support.
**UPDATE** Last night 8th August 2017 we received a call from NHS England to tell us they are going to support us with our campaign to get Oliver to Boston. We are still awaiting Written confirmation about what support is being offered.
On the 31st of January 2017 our son Oliver was born at the John Radcliffe Hospital in Oxford. Within minutes of birth Oliver had difficulty breathing. Oliver was rushed to the neo-natal intensive care unit where a number of scans and tests were carried out. It was discovered that Oliver had a large mass within the wall of his heart and further diagnostics were needed.
On day two of his life he was transferred to Southampton General Hospital. Once at Southampton General Hospital Oliver suffered two episodes of Ventricular Tachycardia and immediatley needed to be sedated and shocked to bring his heart back into a normal rythm.
It was discovered that Oliver has a Cardiac Fibroma in the left ventrical wall of the heart. This means that he has a mass in the left side of his heart, which is larger than his heart itself. This type of tumour places Oliver at risk of his heart arythmias which are life threatening.
Oliver suffered his third Ventricular Tachycardia on the 27th February 2017 where once again he was sedated and shocked back into rhythm. A heart breaking experience for any parent to witness.
As this type of tumour is extremely rare the NHS have only seen a couple of cases. Unfortunately, the NHS are therefore unable to offer Oliver the operation to remove the tumour as they do not have the expertise in his condition. Having researched Olivers fibroma we found a number of cases have been reported in America, mainly at Boston Childrens Hospital. A study revealed between 1990 and 2013, 20 children presented with this condition and all underwent surgery. All 20 patients survied the surgical removal of the tumour and were Ventricular tachycardia free following surgery.
As the NHS are unable to offer this to Oliver we are desperate to raise sufficent funds to take him to Boston for this life saving treatment so that our beautiful little man has the chance of a long and happy life.
We can't thank you enough for helping to give him the biggest gift of a chance at life. ❤️
**UPDATE** Last night 8th August 2017 we received a call from NHS England to tell us they are going to support us with our campaign to get Oliver to Boston. We are still awaiting Written confirmation about what support is being offered.
On the 31st of January 2017 our son Oliver was born at the John Radcliffe Hospital in Oxford. Within minutes of birth Oliver had difficulty breathing. Oliver was rushed to the neo-natal intensive care unit where a number of scans and tests were carried out. It was discovered that Oliver had a large mass within the wall of his heart and further diagnostics were needed.
On day two of his life he was transferred to Southampton General Hospital. Once at Southampton General Hospital Oliver suffered two episodes of Ventricular Tachycardia and immediatley needed to be sedated and shocked to bring his heart back into a normal rythm.
It was discovered that Oliver has a Cardiac Fibroma in the left ventrical wall of the heart. This means that he has a mass in the left side of his heart, which is larger than his heart itself. This type of tumour places Oliver at risk of his heart arythmias which are life threatening.
Oliver suffered his third Ventricular Tachycardia on the 27th February 2017 where once again he was sedated and shocked back into rhythm. A heart breaking experience for any parent to witness.
As this type of tumour is extremely rare the NHS have only seen a couple of cases. Unfortunately, the NHS are therefore unable to offer Oliver the operation to remove the tumour as they do not have the expertise in his condition. Having researched Olivers fibroma we found a number of cases have been reported in America, mainly at Boston Childrens Hospital. A study revealed between 1990 and 2013, 20 children presented with this condition and all underwent surgery. All 20 patients survied the surgical removal of the tumour and were Ventricular tachycardia free following surgery.
As the NHS are unable to offer this to Oliver we are desperate to raise sufficent funds to take him to Boston for this life saving treatment so that our beautiful little man has the chance of a long and happy life.
We can't thank you enough for helping to give him the biggest gift of a chance at life. ❤️
Organizer
Lydia Cameron
Organizer
