Samuel woke up with an upset stomach on November 10th and by the 11th, 2014 he was experiencing memory loss, stuttering, light headedness/dizziness, and problems communicating. He went to urgent care which sent him to LWR ER where they looked for a possible stroke, since he was having problems reading words and short sentences. CT scan ruled a stroke out, so they sent him home. (He was playing soccer & scored 2 goals just a couple days before). Next morning he had problems walking, dressing himself, was more unstable and wasn’t feeling well. He went to All Children’s Hospital ER - where they did a spinal tap, EEG, brain MRI and blood tests. They admitted him. A speech therapist noticed memory and stuttering problems. While he was there he began having back problems and headaches that only intensified after he was discharged. He had a sharp pain when he bent over. The pain increased and he started experiencing sensitivities to sound, lights, clothing and even food textures, sleep disruptions, fatigue, and weakness. He returned to ER a couple days later and was again discharged. The pain intensified to the point of him passing out 3 times, took him back to ER where they admitted him. They tried giving him a caffeine treatment, but the 2nd bag infiltrated causing his hand/wrist to swell to the point they had to cut off his hospital band because it was cutting off his circulation. They added medication and did another MRI before discharging him. A few days later he passed out again. He saw a neurologist and physical medicine doctor who ordered 48 hours of bed rest along with more caffeine. No change. He passed out again a few days later. Changed to a new neurologist who wanted to admit him, but Samuel wanted to try the new medicine the doctor suggested. He tried this for 5 days and with no change, he was admitted to St. Joseph Hospital. While he was there, they scheduled a MRI of his brain & spinal cord and a brain MRA. His muscle spasms were so bad, they couldn’t do the tests and had to put him under anesthesia the next day to do them. They added more medications, did another EEG and he started physical therapy in the hospital, however he was still undiagnosed. After he was discharged in December, he started outpatient physical therapy. Samuel switched pediatricians at the beginning of January and the new doctor swabbed his red throat and called us a few days later stating Samuel had a Staphylococcus Aureus infection. Samuel had an allergic reaction to the antibiotic medication after a few days of taking it, so they switched him to another antibiotic. During this time the physical therapist decided that he couldn’t help Samuel since treatments made his pain worse, so he had to find a new physical therapist. Samuel went back to the physical medicine doctor who wanted him to see an infectious disease doctor. Samuel is still waiting for that appointment. In December his family requested an appointment at the Mayo Clinic in Rochester, Minnesota. He is going there in March for a week or more of outpatient appointments and testing. Only Samuel and his Mom are traveling due to finances. During this time his Mom has had to take care of him and has been unable to work. He hasn't attended school since this all started and currently is in the hospital homebound education program along with attending speech, physical and occupational therapy sessions and doctors' appointments throughout the week. Please help the family with his mounting medical expenses. Thank you for your support.
Mike and Donna (his maternal grandparents)