Ohtahara Disease

Hello All,
This is Efehan. He has a rare disease called Ohtahara disease that took over his brain. He gets over 100 seizures daily. He started new medication last week and his doctor recommended that his parents buy him a chair called " leckey squiggles" so he can sit up and his therapists can help him with body movements as he has none and most importantly to transfer him to the hospital when in need. So we are raising the money to purchase this chair so he can at least sit up and get around as he is attached to bunch of machines. Every penny will count and make a big difference in his life so we appreciate all the help we can get.