One of my work colleauges Catherina Llontop has a beautiful three year old son Enzo, on the11th of August last year, just three weeks before his third birthday, Enzo was diagnosed with the very rare, rapid aging disease Progeria. He is the only known case in Australia and one of only 300 known worldwide.
Also known as Hutchinson-Gilford Progeria Syndrome (HGPS), Progeria is an extremely rare and fatal condition, only three children in Australia have ever been diagnosed, children with Progeria generally pass away of heart attacks or strokes, usually in their early teens.
In April Catherina and her husband Percy are taking Enzo to Boston in the USA to join a clinical trial that will assist in providing valuable research into this heart breaking disease. My goal is to help raise some money so that Catherina, Percy and Enzo are able to spend some time together as a family and make some memories that they can cherish forever, I am sure Enzo (not to mention Mum & Dad) would love Disneyland! Catherina and Percy are great champions & supporters of the Progeria reserach foundation but I would like to make sure that they have the opportunity whilst in America to just have some fun and enjoy this precious time with Enzo.
So I am getting the ball rolling with a small gift towards their trip and I would like to ask all my friends, family and colleauges to do the same, a little bit from a lot of people will help create an opportunity for this beautiful family to make special memories that will last them a lifetime.
So get onboard and maybe re-direct todays coffee money to making Enzo's trip to America something special!
For more information on this awful disease see:
"Kindness in words creates confidence, kindness in thinking creates profoundness, kindness in giving creates love". Lao Tzu
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