Orly is currently a wheelchair user due to her CP and suffers from weak trunk muscles and extreme stiffness in her legs. This means that she cannot stand up unaided, and cannot walk. The SDR operation will involve cutting some of the nerves in Orly's spinal cord which are responsible for the very stiff leg muscles whilst leaving enough intact so that her legs do not become completely paralysed. Orly will be in hospital for 3 weeks following surgery and after the first few days of recovery she will start a programme of intense daily physiotherapy. This will mark the start of a gruelling year of daily physiotherapy which is essential for a positive outcome. The operation has had amazing results for some children, literally being the difference between a lifetime in a wheelchair and the ability to walk. In addition, SDR will help to prevent the natural progression of CP with worsening spasticity, the need for painful surgery on her joints and tendons, and early arthritis. The operation will be done at Great Ormond Street but funded privately. The cost of the operation together with months of intensive therapy is more than £40,000.
On March 29th, this fabulous team of 7 and 8 year olds will walk 10km from Brooklands School to Great Ormond Street Hospital. They want to walk in order to give Orly the chance to walk.
10km is a long way for small legs !! please support them by donating to this worthwhile cause.
Joshua and Daisy are walking in memory of Pa Cyril who would have done anything to help anybody.
Please donate using the buttons above
If you would like to know more about Orly's campaign you can read her own individual fund raising page at the following link:
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- Assaf Ben Ezra
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